The Royal Australian College of General Practitioners 1
1. Position rationale
GPs develop ongoing and trusted relationships with their patients and are well positioned to initiate and promote advance
care planning (ACP). ACP is the embodiment of person-centred healthcare and a response to the challenges that an ageing
population and modern healthcare present. When a patient loses the ability to make decisions about their care (accounting
for approximately one in four patients at the end of life
i
), ACP ensures that a patient’s expressed wishes remain the focus
of decisions made about their care. ACP has also been shown to both improve end of life care and patient and family
satisfaction
ii
.
2. Background
Awareness and acceptance of ACP has grown considerably over the last decade. Medicine has expanded from ‘cure’ to
include the management of chronic and incurable conditions and frailty.
For many, this is in the context of uctuating or failing cognition. Hence patients and their elected Substitute Decision Makers
are often asked to make complex decisions about ‘burden or harm’ versus ‘benet’ of various options for care. Decisions
need to be patient-centred and not disease focused.
At its heart, ACP is the embodiment of person-centred healthcare. When a patient loses the ability to make decisions about
their care, there are risks that the healthcare system will prolong their suffering by keeping them alive in a condition they
would not wish to be in, and fail to attend to their wishes and concerns. ACP addresses these issues by ensuring that a
patient’s expressed wishes remain at the forefront of decisions in relation to their care
iii
, resulting in improved end of life care
and patient and family satisfaction.
iv
It is in general practice where patients have ongoing and trusted relationships with their GP and where ACP is perhaps best
initiated and promoted.
v
Many GPs have already embraced ACP into their practice but many others do not know or do not
feel condent that they know enough about it.
vi
vii
This position statement outlines what ACP is and the reasons why the
College believes it should be incorporated into routine general practice.
3. What is advance care planning?
ACP is a process of reection, discussion and communication that enables a person to plan for their future medical treatment
and other care, for a time when they are not competent to make, or communicate, decisions for themselves. ACP is about
person-centred care and is based on fundamental principles of self-determination, dignity and the avoidance of suffering.
viii
ACP promotes the expression of a person’s values, beliefs and life goals. In the event that a person is unable to express their
preferences due to anticipated deteriorating health, an accident or sudden illness, these articulated values, beliefs and life
goals, help guide future care, including how decisions are made and by whom. Although often about end-of-life care (the last
12 months) or terminal care (the last days to weeks of life), ACP is a process that all patients, and especially those who are at
risk of deterioration in health, can benet from. A person may also wish to complete an advance care plan for other reasons
(for example, there may be some treatment the patient would never wish to receive) or simply for peace of mind in case of
unexpected illness or injury.
ACP will often lead to the completion of an Advance Care Directive (ACD). An Advance Care Directive is a written document,
intended to apply to future periods of impaired decision-making capacity, which provides a legal means for a competent
adult to instruct a Substitute Decision Maker and/or to record preferences for future health and personal care. ACDs are
not clinical care or treatment plans, but clinical care or treatment plans can and should be informed by ACDs. Although a
completed ACD is desirable for the purposes of ACP, the discussions that are central to ACP are valuable in their own right. It
is important to note that verbally communicated instructions and values also hold weight.
Advance care planning will often involve the following components:
• Discussionsaboutprognosisandpossiblefuturescenariosandpatientconcerns
• AppointmentofaSubstituteDecisionMaker(s)andtheirinvolvementininitialandsubsequentongoingdocumented
discussions
• Reachingconsensusoncurrentandpossiblefuture‘goalsofcare’.Thesegoalsmaybesupportedbyastatement
describing the reasoning underpinning the choices a patient has made
Position Statement:
Advance care planning should be
incorporated into routine general practice
September 2012
The Royal Australian College of General Practitioners 2
• Discussingchoicesaroundpreferredplaceofcareduringtheirillnessandinthe‘terminalphase’
• Documentingthesediscussionsinaneasilyretrievableformat,heldbythepatient,theirSubstituteDecisionMaker,their
family and GP.
All of the above components can be strengthened if the patient’s primary carers and family are involved in some way.
Although state and territory government laws vary on ACP and ACDs, Advance Health Directives in some form are legally
binding documents in every state/territory of Australia. It is worth GPs familiarising themselves with some of the forms used
intheirstateorterritory.TheRACGPwebsiteprovideslinkstostate-basedresources:www.racgp.org.au/guidelines/
advancecareplans.
4. The vital role of general practice
GPs should aim to incorporate ACP as part of routine healthcare. A conversation about ACP ts well with a GP’s
responsibility to ensure that the patient receives, and understands, advice on various healthcare options relevant to any
current diagnosis and realistic assessment of prognosis.
GPs should consider raising the topic with all older patients. For example, when they attend for their over 75 year health
check, when dementia is suspected, those with life-threatening, complex and chronic illnesses and those patients with
terminal illness. In doing so, the GP should be mindful of the competency and mood of the patient and ensure that the
patient understands the purposes of ACP and an ACD and how it will be used in the future. Although encouraging their
patientstoengageinACP,GPsshouldmakeitclearthatdocumentingwishesinanACDisnotarequirement.TheGP
should however, also ensure that the patient understands that documented wishes, that are witnessed, have more legal
certainty than those that are only made verbally.
InitiatingaconversationaboutACPwhichfocusesonoutcomessuchaslifegoals,valuesandqualityoflifebeliefs,rather
than detailing types of treatment options a patient consents to or refuses, is likely to be more constructive. For example,
encourage patients to talk about and record in their ACDs the situations they would like to avoid, personal circumstances
and level of functioning considered acceptable or intolerable, interventions that they may consider to be overly intrusive or
their preference for palliative care. ACDs that follow this structure are more likely to be useful as a guide to help clinicians
apply patients’ wishes to future medical care. Some patients, however, may want to record specic detailed wishes of the
care and treatment they wish to receive, or not receive, under certain circumstances, and if so, they should be supported
to do this.
GPs should encourage patients to have conversations with their family, carers and other health professionals involved
in their care, to make them aware of their wishes and the existence of an ACD, if there is one. This will help avoid future
misunderstanding or family disagreements. A copy of an ACD should be included in medical les and be available to
accompany patients across healthcare settings.
ACP will often involve ongoing conversations between a GP and a patient and their selected Substitute Decision Maker(s).
It may be something a GP and their patient will return to and discuss and update regularly over many years, and may not
end with the signing of a legally recognised document such as an Advance Care Directive. On occasion, GPs may be asked
to witness an ACD they have not instigated. Whilst GPs are not under any obligation to do so, if the GP is condent the
person is competent and understands their ACD, a GP’s signature can improve condence in the document and ultimately
help ensure a patient’s wishes are followed.
5. More information
TheRACGPwebsite,undertheClinicalResourcestab,provideslinkstoallstateandterritoryspecicinformationand
resources: www.racgp.org.au/guidelines/advancecareplans. Links are also provided to training and development
resources produced by other organisations, including the UK’s Gold Standard Framework Centre’s guidance for clinicians to
support earlier recognition of patients nearing the end of life.
i
Maria J. Silveira, Scott Y.H. Kim, and Kenneth M. Langa. Advance Directives and Outcomes of Surrogate Decision Making before Death. N Engl J Med 2010;
362:1211-1218 April
ii
DeteringKM,HancockAD,ReadeMC,SilvesterW.Theimpactofadvancecareplanningonendoflifecareinelderlypatients:randomisedcontrolledtrial.BMJ. 2010
Mar 23;340:c1345. doi: 10.1136/bmj.c1345
iii
RheeJ,ZwarN,LynnA.UptakeandimplementationofAdvanceCarePlanninginAustralia:ndingsofkeyinformantinterviews.Australian Health Review; 36(1)
98-104. Published: 9 February 2012
iv
DeteringKM,HancockAD,ReadeMC,SilvesterW.Theimpactofadvancecareplanningonendoflifecareinelderlypatients:randomisedcontrolledtrial. BMJ. 2010
Mar 23;340:c1345. doi: 10.1136/bmj.c1345
v
CommonwealthofAustralia.AHealthierFutureForAllAustralians-FinalReportoftheNationalHealthandHospitalsReformCommission-June2009
vi
Darvall L, McMahon M, Piterman L. Medico-legal knowledge of general practitioners: disjunctions, errors and uncertainties. Journal of Law and Medicine. 2001;9(2):167-84
vii
CommonwealthParliamentofAustralia.Olderpeopleandthelaw.ReportoftheHouseofRepresentativesStandingCommitteeonLegalandConstitutionalAffairs,
InquiryintoOlderPeopleandtheLaw2007
viii
The Clinical T, and Ethical Principal Committee, of the Australian Health Ministers’ Advisory Council (AHMAC). A National Framework for Advance Care Directives.
Consultation Companion Guide for the Draft Framework. Draft ed. Canberra: AHMAC; 2010