Manual II:
Implementation
Coordinated Specialty Care
for First Episode Psychosis
This manual was prepared under contract number HHSN271200900020C between the National
Institute of Mental Health and the Research Foundation for Mental Hygiene. This project has
been funded in whole or in part with Federal funds from the American Recovery and
Reinvestment Act of 2009 and the National Institute of Mental Health, National Institutes of
Health, Department of Health and Human Services. Amy Goldstein, PhD., served as the
Government Project Officer.
Disclaimer:
The views, opinions, and content of this publication are those of the author and do not
necessarily reflect the views, opinions, or policies of HHS.
Contributors:
Melanie Bennett, Ph.D., University of Maryland School of Medicine, Baltimore, MD
Sarah Piscitelli, M.A., M.H.C., Research Foundation for Mental Hygiene, New York, NY
Howard Goldman, M.D., Ph.D., University of Maryland School of Medicine, Baltimore, MD
Susan Essock, Ph.D., New York State Psychiatric Institute, New York, NY: Department of
Psychiatry, College of Physicians and Surgeons, Columbia University, New York, NY
Lisa Dixon, M.D., M.P.H., New York State Psychiatric Institute, New York, NY; Columbia
University Medical Center, NY
Table of Contents
I. Introduction ....................................................................................................................1
II. Administrative Issues in Implementation ........................................................................2
A. Program Structure and Services .............................................................................2
B. Geographic Boundaries ..........................................................................................2
C. Types of Clients Who Will Receive Services ........................................................3
D. Connection with State and Surrounding Partners ..................................................3
E. Determine Funding / Operating Budget .................................................................4
F. Establish a Referral Network ..................................................................................4
G. Application of Clinic Procedures to the Team .......................................................4
H. Staffing Requirements............................................................................................6
I. Team Features .........................................................................................................7
III. Training ........................................................................................................................11
A. Training Overview ...............................................................................................11
B. Team Training (Training the Team as a Whole) ..................................................12
C. Ongoing Training for the Team ...........................................................................14
D. Specialty Training (Training Components of the Team) .....................................14
E. Training for Team Members ................................................................................15
IV. Supervision ..................................................................................................................16
A. Types of Supervision ...........................................................................................16
B. Ways to Deliver Supervision................................................................................18
C. Supervision How-To’s .........................................................................................19
V. Fidelity ..........................................................................................................................21
Appendix List.....................................................................................................................23
Appendix 1. Getting Started Checklist ........................................................................24
Appendix 2. Inclusion and Exclusion Criteria Used in the RAISE
Connection Program ..............................................................................25
Appendix 3. Sample Job Descriptions for Team Hires ................................................29
Appendix 4. Background Readings and Resources - Team .........................................30
Appendix 5. Background Readings and Resources - Recovery Coach
Training .................................................................................................34
Appendix 6. Background Readings and Resources - Supported Employment
and Education ........................................................................................37
Appendix 7. Vignettes to Use in Team Training .........................................................38
Appendix 8. Scripts for Training Role Plays ...............................................................44
Appendix 9. Forms to Use for Team Training Topics .................................................59
Appendix 10. Sample Forms for Supervision Notes ...................................................67
Appendix 11. Resources for Supervision .....................................................................68
Appendix 12. Resources for Fidelity ...........................................................................72
I. Introduction
This manual is designed to guide implementation of a team-based program to serve individuals
who are experiencing emerging psychosis within an existing mental health clinic (MHC). It
provides information on administrative issues that must be discussed and resolved between the
team and the clinic, such as hiring team members, managing team caseloads, providing services
outside of the clinic setting, using the clinic’s support staff for smooth team functioning, and
sharing space and resources. Other critical implementation issues involve training and ongoing
supervision of team members, ways to measure fidelity to the team model, and how to build
supervision and fidelity assessment into ongoing practice within the clinic.
The recommendations and resources provided in this manual are derived from the experiences of
the Recovery After an Initial Schizophrenia Episode Implementation and Evaluation Study
(RAISE-IES). RAISE-IES was funded by the National Institute of Mental Health (NIMH) to
develop tools that would support the implementation of Coordinated Specialty Care (CSC)
programs designed to provide early intervention services for people with non-affective
psychoses. The Connection Program represents an example of a CSC program recommended for
first episode psychosis (FEP), and was the clinical intervention developed and evaluated in
RAISE-IES. This manual is based on the experience of creating and implementing CSC
programs in New York, New York and Baltimore, Maryland. Two Connection Teams were
formed, one in each city. Per the CSC treatment model, and as will be further discussed
throughout this manual, teams were comprised of a Team Leader, a Team Psychiatrist, an
Individualized Placement and Support (IPS) Specialist, and a Recovery Coach. Throughout this
document, we may refer to these team members in our examples of implementation. Keep in
mind that teams in other locations, under different circumstances, may have different staffing
configurations. These particular titles and associated training plans may not apply. They can,
however, serve as useful guides for how to construct new programs.
Experience with creating and implementing these two Connection Teams illustrates the many
opportunities that arise from embedding such a team within a larger MHC in terms of
administration, resource sharing, and collaborations among staff members. The manual is
intended to convey general concepts, providing examples from two program implementations:
The RAISE Connection Program and OnTrackNY. OnTrackNY represents an extension and
adaptation of RAISE Connection and is also a CSC model currently being implemented in four
locations throughout New York.
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II. Administrative Issues in Implementation
Section Tools
Appendix 1: Getting Started Checklist
Appendix 2: RAISE Connection Program Eligibility Criteria
Appendix 3: Sample Job Descriptions for Team Hires
This section describes a number of issues that need to be considered when implementing a team-
based CSC program that serves individuals who are experiencing emerging psychosis. A
checklist of these issues is provided in Appendix 1.
A. Program Structure and Services
An early consideration is the operational location of the teamwill the team-based program
operate and reside within an existing and established MHC, or will it be established as a separate
organization and/or in a separate location? Advantages of the former include the opportunity for
efficiencies within a shared infrastructure. Advantages of the latter include the possible
opportunity to be more flexible and less stigmatizing for individuals who might avoid
community mental health programs entirely. A related question is whether there will be a single
team that functions on its own or a collection of teams that network to provide services to a
broader area. In the case of related or collaborating teams, some efforts (e.g., training,
developing an outreach and referral network, and performing outreach and recruitment) may be
performed centrally to share costs. The single vs. multiple team issue will also influence the
development of a referral network. Establishing a network for a single team will generally
require efforts targeted to a specific area and/or set of referral sources, whereas creating a
network of referral sources for a linked set of teams would require strategies to blanket outreach
across large areas.
B. Geographic Boundaries
Two important issues related to geographic boundaries are population density and service
boundaries. A population base of about 550,000 will have enough incident FEP cases to keep
one FEP team filled at capacity given the team size and service durations proposed here, even
with fairly conservative estimates about the number of such individuals who are identified and
agree to be served.
1
The report by Humensky et al.
1
includes an interactive spreadsheet tool to
estimate the number of teams that a given area can support and the associated cost given user-
specified values for relevant variables (e.g., fraction of incident cases approached). When
deciding whether the population density is sufficient to support one or more teams, the service
boundaries need to be determined for each team operating in the area. Since part of the team’s
mission is to provide at least some services in the field, it is important to consider setting service
boundaries that are reachable and will not require excessive time for travel when team members
provide services in the community. Availability of public transportation is an important
1
Humensky JL, Dixon LB, Essock SE. An interactive tool to estimate costs and resources for a first episode
psychosis initiative in New York State. Psychiatric Services, 2013; 64 (9):832834.
2
consideration, as is how accustomed to travel the potential population is. If the program will
provide supported education or employment, the Individual Placement and Support (IPS)
Specialist will make visits to community locations that need to be within reach of the young
people and families served. As a rule of thumb, new teams should consider accepting clients
living one-half hour from the clinic if education and employment services are offered. Without
education and employment services, consider accepting clients no more than 45 minutes away
from the team location.
C. Types of Clients Who Will Receive Services
Each program should establish its eligibility criteria. The first critical decision around eligibility
is determining a definition of early psychosis. This includes not only how long an individual can
have had psychotic symptoms, but what constitutes psychotic symptoms. Each team also needs
to determine whether they will include individuals with diagnoses associated with psychosis,
such as psychosis due to a medical condition, substance-induced psychosis, or mood disorders
with psychotic features. Finally, the team needs to decide if there are any diagnoses that would
exclude an individual from admission, such as developmental delays, pervasive developmental
disorders, oppositional defiant disorder, or substance abuse and/or dependence disorders.
Other domains to consider when determining eligibility for team services include:
Age range
Comorbid medication conditions
Comorbid trauma
Housing instability
Legal problems or prisoner status
Cultural diversity and need for culturally sensitive services
Primary language other than English
Insurance status
The eligibility criteria used for the Connection Program are listed in Appendix 2, along with the
rationale for each. Service eligibility was determined prior to admission. If, after admission, the
team obtained new information that indicated that the individual was not eligible for the CSC
program, the team continued providing services.
D. Connection with State and Surrounding Partners
It is important for a first-episode specialty care program to link with other programs in the
community that may be needed in the course of a young person’s care. For example, emergency
care services, inpatient substance abuse treatment programs, and other services are not provided
by the CSC but may need to be accessed by clients. It is critical that CSC programs and their
clinicians connect and develop relationships with these other services during the set-up phase, so
that these services may be easily accessed in a crisis situation. To ensure smooth transitions, the
partnerships need to be in place and ready for use.
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E. Determine Funding/Operating Budget
Funding for FEP services will vary by locality and insurance source. In some states, FEP
services may be state supported via Medicaid waivers or other categorical funding. For a detailed
discussion of approaches to financing interventions for FEP, see:
http://aspe.hhs.gov/daltcp/reports/2012/EarlyInt.pdf . Budget issues that need consideration for
FEP programs are similar to those of any other clinic-based program: identification of payment
sources, billing, budget management, expense tracking, supply ordering, and laboratory and
pharmacy tracking and reimbursement.
F. Establish a Referral Network
A referral network is key for the success of the CSC program. Establishing a referral network has
many components that are summarized in Coordinated Specialty Care for First Episode
Psychosis Manual I: Outreach and Recruitment. Once established, the referral network needs
ongoing management referral sources contacted regularly, contact information updated, etc.
The team or mental health center will also need to track referrals and outreach activities.
Strategies for this are provided in detail in the Outreach and Recruitment Manual.
G. Application of Clinic Procedures to the Team
There are a range of procedural issues that are relevant to setting up a CSC team within an
existing MHC.
1. Human Resources and Hiring. Administrators are responsible for hiring staff. Sample job
descriptions are provided in Appendix 3. All agency rules regarding evaluation and
credentialing should be followed. If possible, hire the Team Leader first so that the Team
Leader can be involved in the hiring of the other team members.
2. Resources. Resources needed include space, computers, office equipment, and other
transportation funds.
Setting. Issues pertaining to the setting and space for services (including the capacity to
provide services outside of the clinic) need to be addressed between the team and the
clinic administrators at the start. Early psychosis intervention teams serve a young
population. The setting in which the team is located needs to appeal to young clients.
The setting should be pleasant, inviting, and recovery-oriented. Integrating the service
into community or general health services would be preferred. The team needs
sufficient space to hold groups and team meetings as well as some space for private
individual meetings. The space should, if possible, be in an area that is easily
accessible, either via public transportation and/or with parking. There also needs to be
the option of providing services outside of the clinic.
4
Computer Access. It is important for all team members to have computer access in a
large enough space to also accommodate clients and their families. During sessions or
meetings, team members may use computers to access resources, direct clients and
families to services, assist with job searches, and watch videos or view other treatment-
consistent content. Ideally, team members would have access to a laptop computer that
could be used in different locations and shared among team members.
Medical Equipment. Basic medical equipment needed to dispense and monitor
medication should be available so that clients can work with the Team Psychiatrist on
site at regular appointments. This equipment includes a scale and blood pressure cuff,
as well as a way of obtaining labs, either on site or off site. Working out the logistics of
labs and injections is critical and must be addressed at the start of program
implementation.
Additional Resources. Programs should also have access to money for petty cash.
These funds would be used to make small purchases such as refreshments, snacks,
reading material, or cab fare. The team also needs access to transportation for
community visits and to provide access to community services. This could include a car
depending on the community. Telephones, cell phones, and computers should be
provided according to agency policy.
3. Programmatic Oversight and Management. These tasks include supervision, consultation,
back-up coverage, and other administrative management duties. All of these issues must be
addressed collaboratively and constructively between the team and the MHC.
Supervision. Access to supervision for each of the team members is a critical
consideration. Supervision for the Team Leader within the reporting structure is also
necessary to facilitate integrating the program into the overall agency structure.
Ideally, the Team Leader should have administrative supervision with the clinic
coordinator at least every 2 weeks, and monthly supervision with the clinic’s program
director. Optimal there would be an Individual Placement and Support Supervisor in the
agency or available to the program.
Consultation. Access to expert consultation and/or peer supervision, especially for the
Team Psychiatrist, is also important. At the beginning of the program, it would be
optimal for the physician to have access to consultative expertise to assist with unique
problems that arise for FEP patients.
Back-up Coverage. The clinic administration needs to have back-up plans for coverage
for the Team Leader and the Team Psychiatrist in the event that either is out for a
scheduled absence. Emergency back-up coverage is also necessary if the physician is
not available.
Management Duties. Other personnel and management tasks can include annual
evaluations for the Team Leader and time tracking for all team members. The Team
Leader presumably evaluates all team members. Psychiatrist evaluation should be done
5
according to program policy.
4. Adherence to/Compliance with clinic regulations. The Clinic Administration must ensure
that FEP program elements are compatible with existing agency requirements. Suggested
FEP forms should be compared and matched to required agency forms so that redundancy
can be eliminated.
5. Clinical oversight and management tasks. These include medical records management,
patient registration and tracking, evaluation of clients’ insurance to confirm coverage, and
census and visit tracking reports.
H. Staffing Requirements
First episode specialty teams are comprised of a group of professionals who have different but
overlapping roles. At minimum, teams should have a main leader or coordinator who is
responsible for the client’s overall treatment plan and programming. In addition, each client
should have a team member who provides in-depth individual and family support, suicide
prevention planning and crisis management, and assistance with access to community resources
and supports. This can be the Team Leader or primary clinician. Case management can also be
provided, if needed, by the designated primary clinician or by another team member. Each team
should have a psychiatrist or prescriber who works with clients on issues of medication,
management, wellness, and side effects. Teams should also have a Supported Employment
Specialist to work with clients on re-entry to school or work, as well as team members who can
work with clients on goals that require social or coping skills training and attention to substance
use. Each team must have someone dedicated to establishing and maintaining a referral network
and evaluating potential clients as described in the Coordinated Specialty Care for First Episode
Psychosis Manual I: Outreach and Recruitment.
Team members should have dedicated time for their team-related work. This is especially
important for team members who are not 100% full-time equivalent (FTE). If someone’s time is
divided between the CSC team and other responsibilities, steps should be taken to ensure that
their team time is preserved and differentiated from their other clinic-related responsibilities.
RAISE Connection Program Teams were comprised of a Team Leader, a Team Psychiatrist, an
Individualized Placement and Support (IPS) Specialist, and a Recovery Coach. The Team Leader
and IPS specialist were full-time clinicians, whereas the Recovery Coach and the Psychiatrist
were part-time at 50% and 20% effort, respectively. Teams in other locations and under different
circumstances may have alternate staffing configurations, so these particular titles may not apply.
For example, OnTrackNY Teams have two full time equivalent staff covering the Team Leader,
Primary Clinician, Recovery Coach and Outreach Coordinator roles. A full-time IPS specialist,
0.3 FTE prescriber, and 0.2 FTE nurse round out the team.
6
I. Team Features
There are specific aspects of CSC team functioning that are recommended in order to ensure
program success:
1. Small Caseloads. The team should have small caseloads, consisting of 25–30 clients or less,
to ensure that team members have sufficient time to fully address all areas of intervention.
The small caseload will also enable team members to develop and nurture a trusting
relationship with the client and allow the team member time to perform activities outside of
the clinic setting, such as home visits and community outreach, as needed. This flexibility is
particularly important during the earlier phases of intervention and engagement.
2. Frequent Team Meetings. The whole team should plan to meet once per week. At these
meetings, the team will review the status of each client, discuss each team member's role in
the client’s care, and review progress towards treatment goals. Team meetings should model
respect, recovery, and shared decision-making. These meetings give team members the
opportunity to inform and be informed by one another. They also provide time for the Team
Leader to check in with each team member regarding the activities and goals of each
respective specialty. During team meetings, the principles and practices of CSC care are
reinforced through review of current cases and ongoing training to improve clinical
knowledge and skills. For instance, after a case is presented, the team may provide feedback
on such issues as making the transition to the next phase of care, negotiating with
community providers, and taking a harm-reduction approach to resolving problems.
The team should save the hour following the weekly team meeting for treatment planning or
updating with clients. When an initial treatment plan or an update is discussed with clients,
the goal is to have all team members present. Scheduling time for treatment planning
meetings following the weekly team meeting is an easy way of ensuring that all team
members will be present.
Section IV: Supervision provides a detailed discussion of team meetings for the purpose of
supervision.
3. Central Point of Referral. As discussed in Coordinated Specialty Care for First Episode
Psychosis Manual I: Outreach and Recruitment, referrals to the team should come to a staff
member dedicated to outreach and referral activities. This may be a staff member on the
team (Outreach and Referral Specialist), or a group of staff members on an outreach and
referral team. All advertising about the FEP program should list appropriate contact
information. A central referral process that involves a dedicated referral line staff makes
calling and contacting the team an easy process for clients, families, community providers,
and other potential referral sources.
4. Coordinating Entry to the Program. The person receiving referrals should work with the
team to coordinate the initial team activities, including intake assessment and preliminary
treatment planning. Based on the assessment, the team will engage in shared decision
making with the client to plot an overall treatment plan to meet the individual’s expressed
7
recovery goals; treatment planning is conducted in full consultation with the client. Clients’
capacity and interest in formal goal setting and making decisions can fluctuate throughout
the course of treatment; preference and comfort with the decision-making role should be
regularly explored. For the RAISE Connection Program Teams in Maryland and New York,
the Team Leader coordinated a young person’s entry to the program after the Outreach and
Referral Specialist identified them as eligible.
5. Working as a Team in a Shared Decision Making Framework. Although the CSC team
works collaboratively in the treatment of a client, a client may only be working with one or
two clinicians at any point in time. At a minimum, all clients should work with the Team
Leader (or assigned primary clinician for programs with others serving in the primary role)
and the Team Psychiatrist. Even clients who are not interested in taking medication should
meet with the psychiatrist to learn about medication options, set goals regarding when a
medication trial may be warranted, and establish a relationship with the psychiatrist in case
his/her feelings about medication change. Working with other members of the team is not
mandatory but strongly encouraged, and it is expected that these working relationships may
change over time.
Case Narrative 1: Introduction to Team Members and Gradual Engagement with Different Team
Components
The Connection Program Team uses treatment planning to help new clients learn about the different
aspects of the program and decide, within a framework of Shared Decision Making, which components
they wanted to use and when. For example, at program entry, one new client may be most interested in a
trial of medication, and not be ready to work on skills training or employment. Another new client may be
very interested in getting back to work or school, but less interested in medication or family work. A third
might be willing to work on decreasing his/her substance use in order to benefit most from medication
and prepare for an eventual job search. Getting started with the team is flexible such that what is most
important to the client and his/her family can be addressed first, and components can be added later as
clients feel better, revise their goals, and look to the future.
Although team members may cover for each other occasionally (e.g., the Team Leader may
see a client and work on employment related goals if the employment specialist is not
available one day), each team member specializes in his/her component of the intervention.
If a team wants to be structured to be able to accommodate overlapping roles, it is important
to hire people with common skill sets so that tasks can be shared across team members. As
discussed in Section III: Training, role flexibility is also the reason why cross-team training
is important; the team members should be trained in all components they will be expected to
cover clinically. For example, Maryland and New York Connection Teams were comprised
of a Team Leader, a Team Psychiatrist, an Individualized Placement and Support (IPS)
Specialist, and a Recovery Coach; these staff members largely focused on their individual
areas of expertise and there was little overlapping of roles.
While the RAISE Connection Program had little overlap in roles, new teams in other
locations with different circumstances, may have alternate staffing configurations and be
8
structured to have more flexibility in sharing roles. OnTrackNY, is now being implemented
in four locations in New York. OnTrackNY teams will be made up of a Team Leader, a
Primary Clinician, a Team Psychiatrist, an IPS Specialist, a Recovery Coach, a Team
Nurse, and an Outreach and Referral Specialist. In this structure, the individuals serving as
the Recovery Coach or Outreach and Referral Specialist can also serve in the Primary
Clinician role.
6. Connecting with Community Partners. The team helps the client create or re-establish a
social network within and beyond the family. School and work provide other opportunities
to establish and grow natural supports. Some clients need help connecting with resources to
avoid housing loss or other adverse social outcomes. The team works with the client and
family to develop advocacy skills.
Use of community resources is directly linked to goals in the treatment plan. The role of the
team members is to not only identify resources and make referrals, but actively assist the
client and family in linking to and using these resources. This can include the Team Leader
following up with a referral source to check on a client's progress, the Recovery Coach
accompanying the client to meetings or appointments in the community, or other active
assistance as needed. Identifying community resources will be actively encouraged and
assisted by the team.
There are several areas in which resources in the community may be sought:
Mental Health or Clinical Services Not Provided by the Team: examples include
cognitive behavioral treatment for depression, anxiety disorders, or PTSD; inpatient
substance abuse treatment; dialectical behavior therapy
Non-Psychiatric Medical Services: examples include primary care services, lab
services, or other medical appointments; substance use detoxification
Peer or Community Support Resources: examples include National Alliance on
Mental Illness (NAMI), Alcoholics Anonymous/ Narcotics Anonymous (AA/NA,
Double Trouble, and the Depression and Bipolar Support Alliance. Consumer
organizations, such as On Our Own Wellness and Recovery Centers, are also
important resources for clients and families.
It is also important to assist clients in re-connecting with their communities around activities
that are social and pleasurable. These may be activities that consumers do with their
families, friends, or alone.
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Case Narrative 2: Ways to Re-Engage with the Community.
It is important to remember that clients with early psychosis are young people and an important
component of their recovery is doing things they enjoy with other young people. The Team helped clients
access social supports and engage or re-engage with their communities in line with their treatment goals.
Clients looking to make new friends might participate in the team’s social skills group, meet with the RC
in the community to practice these skills, and then plan a community activity to do on his/her own in
order to put these skills into practice. Clients were encouraged by team members to engage in community
activities they found enjoyable or that would allow them to try out new skills gradually and prior to
having to use them in an important situation. For example, one client had, before his hospitalization,
enjoyed playing basketball at college with his friends. The team worked with him to identify places he
could play basketball now that he was living at home, people he could ask to play ball with him, and
times during the week when he could get a game together. Another client was distressed by the weight
gain she experienced due to her medication and told the team that she wanted to start exercising. The
team helped her talk to her brother about taking her to a gym; assisted her in signing up for a gym
membership; and provided support, encouragement, and praise as she began to swim at the gym several
times per week. The team helped another client who wrote poetry to find locations in the community
where he could listen to poetry; he eventually presented some of his own work. In all of these examples,
the team helped consumers engage with people, activities, and community settings in ways that were
positive and in line with their recovery goals.
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III. Training
Section Tools:
Appendix 4: Background Readings and Resources – Team
Appendix 5:Background Readings and Resources – Recovery Coach Training
Appendix 6: Background Readings and Resources Supported Employment and
Education
Appendix 7. Vignettes to Use in Team Training
Appendix 8. Scripts for Training Role Plays
Appendix 9: Slides and Forms to Use for Team Training Topics
A. Training Overview
As has been emphasized throughout this manual, developing a CSC program to serve individuals
with emerging psychosis will be influenced by the clinic in which the team is going to function
and by the needs and resources of that clinic. This means that not all teams will be exactly the
same, though all will be implementing the same underlying principles of CSC care. Training
should be tailored to the specific needs of the clinic and team staff. This section provides an
overview of training approaches for the team members in clinical roles. Training considerations
for those responsible for outreach and recruitment can be found in the Coordinated Specialty
Care for First Episode Psychosis Manual I: Outreach and Recruitment.
Team member training encompasses two domains: Team Training and Specialty Training. Team
Training focuses on information and skills needed by all team members, including the overall
program philosophy and principles of the CSC program and the procedures that structure the
team and guide the ways that team members work together and assign tasks within the team.
Specialty Trainings are targeted to the responsibilities of each team member; these trainings
focus on the skills and interventions required by particular team members to effectively deliver
their assigned component(s). A program should decide up front how much flexibility there will
be in role assignments. If there is greater flexibility, team members should be ‘cross-trained’ to
competency in the various specialized areas in which they will be expected to serve.
Background readings and discussions are useful for all team members. More intensive in-person
or in some cases on-line training is also needed. The amount of time devoted to training is
influenced by the background and previous training/experience of team members. In training the
RAISE Connection Program Teams in Maryland and New York, initial in-person training lasted
for 2 days and included presentations on the model supporting the work of the team, didactic
presentations on the different components of the team, and exercises designed to illustrate
clinical activities and ways for the team to work together to understand clients, their needs, and
how these impact treatment planning.
An important consideration is who should provide training as outlined in this section. New FEP
teams need to identify the experts and resources in their communities and within the larger
community of FEP treatment development. This manual includes a range of written and online
resources. New teams should plan to reach out to national experts, local community
11
organizations and providers, and existing teams for assistance in accomplishing the training.
Information can be found on the NIMH RAISE website (http://www.nimh.nih.gov/raise) or from
the RAISE intervention program developers.
B. Team Training (Training the Team as a Whole)
1. Background Readings and Discussions
a) Readings. All team clinicians should be provided with background readings on FEP and
the lived experience of psychosis, and topics that are important across program elements.
The cross-cutting topics include: shared decision making, trauma-informed care, the
recovery model, and suicide/safety planning. A list of background readings and resources
is provided in Appendices 4–6. An experienced trainer or facilitator should lead
discussions of the readings so that team members learn about and understand the unique
challenges experienced by individuals experiencing an FEP and their families. In
addition, readings should emphasize the importance of incorporating client and family
input into treatment and goals and the strategies for how to interact with and include
families in decision making while respecting the preferences of the young adult.
b) Online resources. In addition to readings, many online resources provide valuable
information in different formats and allow team members to practice or learn new content
and skills (See Appendices 4–6). The Voices of Recovery video series, developed for the
RAISE project, can be found at the following link:
http://practiceinnovations.org/ConsumersandFamilies/ViewAllContent/tabid/232/Default.
aspx. A manual that provides guidance as to how the videos may be used for staff
training, as well a discussion for how to use with clients and families is available at
http://practiceinnovations.org/OnTrackUSA/tabid/253/Default.aspx.
c) Additional Perspectives in Training.
Peers. Including peers or a consumer-professional who understand both receiving
and providing services can provide an invaluable perspective to training.
Peer/consumer knowledge of the subjective experience of psychosis and treatment
is a critical perspective to represent in training. Existing resources on peer
experience, such as those provided online or newly created materials to address this
topic, can be key adjuncts to care.
Family. The importance of understanding the perspective of family members who
are often central in the lives of individuals experiencing psychosis cannot be
overstated. Trainings should include family members or a familyprofessional who
can communicate to staff how the family might be experiencing the situation and
who understands the impact of accepting the changes and challenges taking place
with their loved one. NAMI presentations and trainings might also be helpful for
staff training.
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2. Intensive, In-Person Activities
The purpose of the in-person, whole-team training activities is to present a thorough review of
information that is key to understanding the team approach and to introduce and practice the
concept of “team-ness” to the team members. In-person training sessions allow for presentation
of material that is relevant to the team as a whole, and then for breakout sessions to present
material by component.
The informational and didactic components of training should include:
Topics relevant to the CSC conceptual model:
first episode psychosis
critical time intervention
mental health recovery
working with youth
shared decision making
trauma informed care
safety planning
person-centered treatment planning
Topics relevant to the components of the team:
psychopharmacology
supported employment and education
working with families
social skills training and substance abuse treatment
relapse prevention planning
A review of functional procedures of the team:
team member roles
small caseloads
frequent team meetings
progress notes and documentation of team activities
after hours roles and responsibilities
A thorough review of the timing of team activities:
initial referral and treatment planning
a history and needs assessment done collaboratively by the Team Leader and the
Team Psychiatrist
development and implementation of the initial treatment plan
Team Leader activities at the start of treatment (e.g., set up a family meeting;
complete safety planning, develop a relapse prevention and crisis plan)
activities for other team members at the start of treatment (e.g., IPS Specialist and
the Skills Trainer must introduce themselves to the client, meet with the client to
describe what services they provide, and assess the client’s needs and goals in their
respective areas)
ongoing treatment
13
issues around missed appointments/potential dropout/assertive outreach
transition
linking with community and peer resources
Forms to use for many of these topics are available in Appendix 9.
The experiential/practice components of the training should include:
Clinical Vignettes (see samples in Appendix 7) can be used to stimulate discussion
among the team members, asking them to identify the important administrative and
personal aspects of the needs assessment process and determine how to address the
relevant needs and issues.
Role Playing Situations (see samples in Appendix 8) can illustrate key clinical concepts
and activities relevant for new team members.
Mock Team Meetings are also useful to practice/discuss how to coordinate, sequence,
and prioritize the various treatments and services and engage a client and family in
developing a full and integrated treatment plan. Materials including clinical vignettes
and scripts for role plays are provided in Appendix 9.
C. Ongoing Training for the Team
Ongoing training is essential. Training key intervention components such as shared decision
making, motivational enhancement, critical time intervention, and safety planning should be
repeated regularly to make sure knowledge and skills stay fresh. Ongoing training can take the
form of in-person expert training, reviewing and role-playing situations to get continued practice,
or finding relevant (training experiences in the team’s geographic area. Hospitals, colleges,
universities, and other research institutions are excellent resources the team should explore
these settings, meet people doing related work, and get on listservs and mailing lists so that they
will be aware of any training opportunities. The team will be faced with new experiences and
situations each day; making ongoing training a priority will help prepare team members for new
treatment issues when they arise. Team members should keep a list of areas they feel additional
training is needed and work with MHC staff to link with training opportunities in these areas.
D. Specialty Training (Training Components of the Team)
Specialty training focuses on specific team roles. The in-person or intensive component is
enhanced and more efficient when more than one team is being trained.
1. Background Readings and Discussion.
All team members should be provided with background readings on topics related to their
specialty area. A list of background readings and resources relevant to different team members
14
is provided in Appendices 4–6. Team members should share what they learn with each other
this both reinforces new learning and also helps team members inform each other about their
areas of expertise.
2. Intensive, In-Person Activities.
As noted above, in-person trainings allow for in-depth presentation of material. As part of a
team-wide, in-person training, time should be allocated to breakout sessions to present material
that is relevant and specific to each team member. These breakout sessions allow all Team
Leaders, Psychiatrists, IPS Specialists, Recovery Coaches, and other team members to learn
and practice topics and interventions that are specifically relevant to their areas of focus. Below
is a brief listing of the topic areas to cover for each clinical role. These breakdowns reflect the
division of roles and responsibilities used in the RAISE Connection Program.
Team Leaders
How to be a Team Leader
Critical time intervention
Working with families
Safety planning
Relapse prevention planning
Team Prescriber
Antipsychotic treatment schedules
Side effect monitoring
Linkage to primary care
Smoking cessation
Supported Employment/Education Specialists
Background and implementation of supported employment and education
Recovery Coaches (see Appendix 5 for resources and readings)
Treatment interventions and strategies e.g., social skills training, substance abuse
treatment
Coping skills
Helping clients become more active and master the skills needed to engage in
different activities
Strategies for support and engagement activities
E. Training for Team Members
Ongoing training for team members in their areas of specialty is important. Team members
should connect with community and state sources of support such as learning collaboratives,
listservs, and interest groups, and should link with other FEP teams both locally and nationally. It
is relatively easy to reach out to others doing FEP treatment, supported employment and
education, family psycho-education, and behavioral family interventions, etc. Each team member
15
should keep a list of areas in which they feel they need additional training and work with MHC
staff to locate training opportunities in these areas.
IV. Supervision
Section Tools:
Appendix 10. Sample Forms for Supervision Notes
Appendix 11. Resources for Supervision
A. Types of Supervision
CSC programs require several types of supervision. How supervision is handled may be
contingent on where the program is located and the rules of the clinic in which the CSC program
may be embedded. The following supervision is recommended:
1. Administrative Supervision involves oversight to ensure that the FEP team is following the
rules and procedures of the clinic in which it is embedded. The format, frequency, and
emphasis of this supervision will need to be worked out on a team-by-team basis as clinic
needs vary. Generally, the individual who is leading the team will receive administrative
supervision from someone within the clinic administration and then pass along information
and monitor the rest of the team regarding issues such as changes in clinic policy or larger
programmatic issues that impact the CSC team. In the NIMH RAISE Connection Program,
the Team Leader met weekly with the Clinic Coordinator and monthly with the clinic
Program Director.
2. Clinical Supervision involves reviewing clients’ status to ensure sound and competent
clinical care. The amount of clinical supervision will also vary by team depending on clinic
rules and regulations. Supervision is distinct from team meetings, in which all members of
the team meet, report on their work with an individual, and plan continued work towards
goals; team meetings may often include the client and/or family member/s. In contrast,
clinical supervision includes discussion of the specific activities and techniques the
clinician is providing, periodic review of session tapes or notes, and identification of ways
to improve or enhance clinical interactions. In the RAISE Connection Program, the Team
Leader conducted clinical supervision every other week with both the Recovery Coach and
the Supported Employment Specialist.
3. Clinical Consultation involves discussion of individual clients with someone outside of the
team to maintain good clinical decision-making. The Team Leader and the psychiatrist
each should identify an individual with similar credentials within the clinic but outside of
the team to provide this consultation in monthly meetings.
16
4. “Component” Supervision can bring together team members across multiple teams. If
there are multiple teams in a region or state, a creative addition to supervision would be to
have a regular meeting of all the team members (e.g., a meeting of all of the Recovery
Coaches, or supported employment/education providers). These meetings can provide a
forum in which those with similar roles on teams would be able to share materials,
resources, and successes, as well as help in problem solving and creative thinking. This
mode of supervision is especially well-suited to issues related to family involvement as
team members can discuss ways to engage families in care and give each other new ideas
in this area. For example, in the RAISE Connection Programs in New York and Maryland,
Team Leaders from the two states met via conference call for component supervision, as
did the Psychiatrists, Recovery Coaches, and IPS Specialists. These conferences occurred
about once a month and were facilitated initially by national experts and then by local
training teams.
The experience of the RAISE Connection Program generated suggested topics for
component supervision meetings:
Team Leader Component Supervision:
Case discussion
Integrating clinic requirements into care (e.g., clinic specific forms and assessments)
Integrating the model throughout all of the Team Leader roles and responsibilities,
including the family component.
Psychiatrist Component Supervision:
Case discussion
Problems encountered with the implementation of preferred medications
Strategies /approaches that have been found useful to help participants manage their
illness and psychotropic medications.
IPS Specialist Component Supervision:
Review of work and employment status of each client
Successes and challenges in job development
Applying the model to supported education
Creative ways to engage clients in job searches
How to coordinate and organize meetings with job sites, schools, etc.
Recovery Coach Component Supervision:
Review areas being addressed (social skills training or substance abuse)
Challenges in teaching skills and supporting implementation outside the clinic
Ways to build rapport and engagement,
Educating clients about the role of the Recovery Coach
How to use motivational enhancement strategies and shared decision making when
approaching clinical problems with clients
Discussions regarding strategies for talking with young clients about planning for
goals and using new skills in their lives.
17
Family Work Component Supervision:
implementation of monthly family education groups and other family program
components
Engaging families
Educating family members about psychosis
Family work/issues not addressed during the regular supervision meetings.
5. Supervision in the Team-based Model: In the same way that training has team- and role-
based components, supervision also requires both perspectives. Supervision in the team-
based model involves all team members and focuses on whether the team is working
together in accordance with the model. Model supervision involves client reviews or
reviews of specific topics to ensure that the team is adhering to the underlying principles
of mental health recovery, shared decision making, and critical time intervention. All
members of the team participate in this monthly meeting. It can take the form of a team
meeting in which a theme that runs across the care of different clients is discussed. This
is also a good place to discuss issues that are common to many clients, such as how to
address trauma or how to work with families within the team.
If all types of supervision are needed, decisions must be made about who will provide them and
how to manage the amount of supervision so that there is not an excess of meetings. It will be up
to the team and the clinic to decide how best to use supervision time to cover the needs of the
team.
B. Ways to Deliver Supervision
Supervision can be done in person or on the phone. It is recommended that administrative and
clinical supervision be done in person, and that the medical records for the clients being
discussed be available during the meeting. This allows for review of records to make sure that
forms are properly completed in a timely manner. Clinical consultation and model supervision
can be done in person or on the phone. A plan for each should be developed and provided to
attendees prior to the meeting. For clinical consultation, the Team Leader or the Team
Psychiatrist should list one to two clients to discuss with the consultant, provide a brief write-up
on the background of the case and the issues for which consultation is sought. For model
supervision, each team member should be assigned a date to prepare a clinical case or several
cases that illustrate an issue. A write-up of the case(s) should be provided to all attendees prior
to the meeting.
While supervision can be done by telephone or in person, experience suggests that some in-
person time is necessary and beneficial. The team and the clinic can decide the exact ratio of
phone to in-person meetings. Some types of supervisionespecially if it is component
supervision shared among multiple teamsmay be suited to the telephone. For example,
“model” supervision could be shared among multiple teams, done over the phone or via video
conference. The discussion could involve teams sharing common patterns or themes they see
among clients and share how to address these while adhering to the model.
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C. Supervision How-To’s
Supervision is an important part of clinical care. Supervision should be on a regular day and time
that is good for all attendees and should be identified as an important part of the service of the
team.
Good supervision takes planning. As noted above, each supervision meeting should have a leader
who is responsible for planning the content of the meeting, creating an agenda, distributing the
agenda to attendees, writing the supervision note, and recording attendance and what was
discussed. A sample form for supervision notes is provided in Appendix 10. For some types of
supervision (e.g., clinical), the leader of the meeting is generally the more senior person (e.g.,
Team Leader). In other cases, the leader of the supervision meeting can be alternated so that all
members of the meeting are the leader at some point.
The following are some sample structures for supervision meetings:
Clinical Supervision, Team Leader/Recovery Coach
1. Review list of clients who are working with the Recovery Coach. Note clients who are
nearing the end of their work with the Recovery Coach and provide a status summary to
the Team Leader. Assign new cases to Recovery Coach; Team Leader can provide a
summary of the case and a reason for the referral to the Recovery Coach.
2. Identify one or two clients to discuss in-depth. These could be cases that are progressing
well and the Recovery Coach has ideas about additional work to be done, or cases that
are challenging (e.g., poor engagement with Recovery Coach, lack of progress, feeling
stuck). The Recovery Coach should be prepared to provide a summary of these cases and
identify the issue or challenge to discuss with the Team Leader.
3. Check in regarding groups (e.g., social skills, substance abuse treatment, family) that are
led by the Recovery Coach and update on attendance, topics covered, and how these
topics can be integrated into individual work.
4. Other issues/action plan to work on between supervision meetings.
Administrative Supervision, Team Leader and Clinic Administrator
1. Review all clients receiving services from the Team. Make sure all forms are complete
for all clients or identify what’s needed for whom and when it’s due.
2. Discuss any administrative challenges that have taken place since the last meeting.
3. Check in regarding new cases or cases that will soon be discharged/transitioned to
community care.
4. Other issues/action plan to work on between supervision meetings.
19
Model Supervision, All Team Members Present
1. One team member is the leader of the meeting. This can rotate among team members.
2. The leader identifies an issue or client whose care is challenging for discussion and
provides a care summary. These challenges are discussed and possible responses are
identified according to the treatment model.
3. Discuss how each team member can contribute to this case in ways that are in line with
the model.
4. Other issues/action plan to work on between supervision meetings.
A list of resources for supervision is provided in Appendix 11.
20
V. Fidelity
Section Tools:
Appendix 12: Resources for Fidelity
Fidelity measures are important because they provide valuable information to three stakeholder
groups:
Payers want to know if they are getting what they are paying for
Trainers/supervisors want to know whether clinical staff are implementing the
interventions as intended over time
Clients/families want to know if the services they are investing their time/effort/finances
in are up to par and can reasonably be expected to promote the outcomes they care about
(school/work/friends/health)
A practical approach to fidelity is recommended, with measures drawn from information that is
typically readily available in routine practice settings implementing the CSC program as
described. Fidelity measures should support and draw from routine clinical operations.
Optimal fidelity measures are those that are good proxies for the components of the intervention
that they are measuring. For example, a core expectation for the intervention is that antipsychotic
medications are a central part of treatment for almost everyone. Hence, associated fidelity
measures would examine the proportion of clients prescribed an antipsychotic and the proportion
who had had an adequate trial on an antipsychotic, where “adequate” was specified clearly
enough to be measured objectively. Routine service logs will support many fidelity measures so
long as they note for each contact the client, staff involved, whether family was present, and the
location of the service (office versus community). The presence of routine clinical forms such as
those included in this manual to support the intervention can be used to document that those
components of the intervention occurred. For example, if a program expectation is that safety is
assessed at intake, then the presence of such a completed safety-assessment form at intake
signifies that such an assessment was completed. Routine medication records and associated
laboratory orders provide information necessary to assess fidelity to the psychopharmacology
components of the intervention. Appendix 12 provides, for each intervention component, core
expectations and how they may be operationalized.
Most clinics or hospitals housing an FEP team will have staff record service contacts via an
electronic record. All will have electronic claims records. Many also will have electronic health
records for each client that will contain information such as weight, medications prescribed, and
various symptom check lists. Whenever possible, fidelity data should be obtained from claims
data and other electronic sources to minimize the data collection/compilation burden on clinical
and administrative staff. As a fallback, payers can specify the data an FEP program is required to
submit, and those submissions can be verified via site visits. The RAISE Connection Program
Teams in Maryland and New York were part of a research project operating in two very different
sites and relied on abstracting information from specified locations in the project’s required
clinical forms maintained in clients’ charts and entry of that data into a centralized database
built for this study. Designing, building, debugging, and implementing such a chart abstraction
21
system is cumbersome for short-term use, but is a feasible approach when abstraction from
electronic claims is not an option.
22
Appendix List
Appendix 1: Getting Started Checklist
Appendix 2: Inclusion and Exclusion Criteria Used in the RAISE Connection Program
Appendix 3: Sample Job Descriptions for Team Hires
Appendix 4: Background Readings and Resources - Team
Appendix 5: Background Readings and Resources - Recovery Coach Training
Appendix 6: Background Readings and Resources - Supported Employment and Education
Appendix 7: Vignettes to Use in Team Training
Appendix 8: Scripts for Training Role Plays
Appendix 9: Forms to Use for Team Training Topics
Appendix 10: Sample Forms for Supervision Notes
Appendix 11: Resources for Supervision
Appendix 12: Resources for Fidelity
23
Appendix 1: Getting Started Checklist
Getting Started Checklist:
Activity
Identify program structure and services
Determine geographic boundaries
Define clinic population and eligibility criteria
Connect with state and surrounding partners
Establish funding / operating budget
Establish a referral network
Apply clinic procedures to the team
Establish programmatic oversight rules
Assess staffing requirements
Develop standards for team functioning
Develop training plan
24
Appendix 2: Inclusion and Exclusion Criteria Used in the RAISE Connection Program
Inclusion Criteria: All Should Be Met
1. Age range: 15–35 years (Maryland 15–35; New York 16–35)
2. Diagnosis: schizophrenia, schizoaffective and schizophreniform disorders, delusional
disorder, psychosis not otherwise specified (NOS)
3. Duration of psychotic symptoms > 1 week and < 2 years
4. Ability to speak and understand English
5. Anticipated availability to attend the clinic for 1 year
Exclusion Criteria: None Should Be Met
1. Other diagnoses associated with psychosis:
o Substance-induced psychotic disorder
o Psychotic affective disorder (e.g., major depressive or manic episode with psychotic
features)
o Psychotic disorder due to a general medical condition
2. Medical conditions that impair function independent of psychosis
3. Intellectual disability
Inclusion Criteria 1: Age range 15–35 years (Maryland 1535; New York 16–35). Treatment
at each specialty clinic will be informed by the developmental stage of its clients. Each clinic
will need to select the age range for services, and then ensure that the team is appropriately
trained to meet the psychosocial treatment needs of that population. This is particularly true for
IPS services, because educational and vocation needs can vary widely for different age groups.
Recovery groups could also be targeted for developmental stages or goals, such as transitional
aged youth or college groups.
Inclusion Criteria 2: Diagnosis of schizophrenia, schizoaffective disorder, schizophreniform
disorder, delusional disorder, psychosis not otherwise specified (NOS), or brief psychotic
disorder. In the case of the Connection Program, the clinic served individuals who were in the
early stages of a primary psychotic disorder. The interventions were selected and staff trained
specifically for individuals experiencing these symptoms. Other clinics may consider expanding
to include individuals experiencing mood-or substance-induced psychosis.
Inclusion Criteria 3: Duration of psychotic symptoms > 1 week and < 2 years. A wide
variety of methods exist for defining the start of psychotic symptoms. For the Connection
Program, the ORS evaluated the date of each of the earliest symptoms. Many individuals
experience transient, attenuated symptoms of psychosis without ever developing psychosis. For
an individual to be eligible for the Connection Program, the potential clients’ symptoms were
evaluated for
o the level of their symptom intensity (frequency),
o the impact on their behavior, and
o whether the individual experiences a reduced awareness that their unusual
25
perceptual experiences and/or unusual beliefs are symptoms.
Date of onset should be determined for each symptom. In the Connection Program, the earliest
date of onset was used to calculate the duration of psychotic symptoms. Psychotic symptoms
include:
Delusions of referencebelief that others are taking special notice of them,
talking about them, references on TV, reading material, etc.
Persecutory delusionsbelief that he or she is being attacked, harassed,
persecuted, or conspired against
Grandiose delusionsbelief that he or she possesses special powers, exaggerated
importance (rich or famous), or relationship to a deity
Somatic delusionsbelief that his or her body is grossly distorted; change or
disturbance in appearance or functioning
Other (religious, guilt, jealousy)unusual religious experiences, belief that he or
she must be punished for something (guilt), belief that partner was being
unfaithful, or belief that he or she is in a relationship with someone famous
Mind control (insertion/withdrawal)belief that thoughts and/or actions are
under the control of an external force. Individual may experience thoughts being
placed into head and/or thoughts being taken out of his or her head.
Thought broadcastingbelief that others can hear their thoughts or read his or her
mind
Hallucinations: auditory, visual, tactile, olfactory, and/or gustatory
A reduced awareness that a person’s unusual perceptual experiences and/or unusual beliefs are
symptoms must be present (e.g., a belief held with conviction despite evidence to the contrary).
Additionally, either impact on behavior and/or intensity (symptoms occur at least intermittently
or a preoccupation with belief) must be evident.
Other specialty clinics may use different criteria to determine the duration of psychotic
symptoms. Examples include date of first antipsychotic medications prescribed for psychosis, or
date of first psychiatric hospitalization due to psychosis. A date of onset can also be determined
by subjective terms through a discussion between the ORS and the Senior Clinician.
Inclusion Criteria 4: Ability to speak and understand English. Language inclusion criteria
should be determined based on the available services at each specialty clinic site. The
Connection Program staff did not have bilingual staff members or available interpreters. For
specialty clinics serving clients speaking other languages, this criteria item should be revised
accordingly. If the service-seeker was a minor, the Connection Program required that at least one
26
parent/guardian could discuss and approve participation in English. Specialty clinics will need to
communicate with parents/guardians about treatment and provide psycho-education to families.
Consider carefully the languages and fluency levels that your clinic will require for
parents/guardian attending the program to ensure that collaborative decision making can occur
with parents/guardians as well as with the minor service-seekers.
Exclusion Criteria: None Should Be Met
Like the inclusion criteria, the Connection Program exclusion criteria were created based on the
types of individuals that the clinic intended to serve and the available services at the program.
Some individuals were experiencing symptoms and illnesses beyond the scope of the teams
specialized training. Other individuals were experiencing psychotic symptoms caused by
illnesses other than a primary psychotic illness.
Substance-Induced Psychosis.
Type of substance and usual pattern of use
Focus on alcohol, sedatives, hypnotics, and/or anxiolytics
Focus on periods of significant increase or decrease in relation to onset of psychotic
symptoms
Qualifying psychotic symptoms must be present in the absence of substance
intoxication and/or withdrawal
Affective Psychosis. Individuals experiencing affective psychosis were not included. This
included individuals experiencing either a major depressive episode or a manic episode with
psychotic features. Individuals with mood symptoms and substance abuse were accepted;
however, these individuals experienced prominent psychosis, in the absence of any mood
symptoms. Services for primary mood, substance use, or medical illnesses are substantively
different from those with primary psychotic disorders. Other specialty clinics include individuals
with mood- or substance-induced psychosis, and each clinic will need to choose parameters for
psychosis substance and mood.
a) Presence of Mood Symptoms (Based on DSM-IV) (Focus on temporal relationship
between mood symptoms and onset of psychotic symptoms)
Major Depressive Episode: Five or more of the following symptoms with impact
on functioning for a period of 2 weeks or greater (1 or 2 must be present)
1) Depressed mood most of the day or nearly every day
2) Markedly diminished loss of interest in activities previously enjoyed
3) Significant weight change (loss or gain)
4) Insomnia nearly every day
5) Psychomotor agitation or retardation nearly every day
6) Fatigue or loss of energy
7) Feelings of worthlessness or excessive guilt
8) Diminished ability to concentrate or indecisiveness
9) Suicidal ideation and/or suicidal attempt
Mania: Persistently expansive or irritable mood, plus three or more of the
27
following symptoms within a distinct period (at least 1 week)
1) Inflated self-esteem or grandiosity
2) Decreased need for sleep
3) Pressured speech
4) Flight of ideas/racing thoughts
5) Distractibility
6) Increase in goal-directed activity or psychomotor agitation
7) Excessive engagement in pleasurable risk-taking behaviors
Qualifying psychotic symptoms must be present and primary with an absence of
mood symptoms for at least 2 weeks.
Psychosis Due to a General Medical Condition
Prominent psychotic symptoms due to the direct physiological effects of a general
medical condition
General Medical Conditions include: neurological conditions (including traumatic
brain injuries), endocrine conditions, metabolic conditions, autoimmune disorders
with central nervous system involvement
Medical Conditions that Impair Function Independent of Psychosis
As defined by disability necessitating the person to be on or to apply for Supplemental Security
Income [SSI], Social Security Disability Insurance [SSDI], workers compensation, veterans
disability, or similar benefits.
Intellectual Disability
Operationalized as an IQ below 70 for the intervention, but we recommend raising this to
exclude borderline intellectual functioning (IQ below 85).
28
Appendix 3: Sample Job Descriptions for Team Hires
At full capacity, the team’s caseload would be 30 clients. Clients will receive services for 2
years. Training will be provided to all staff members working with individuals experiencing their
first episode of psychosis and in the specific treatments that will be provided.
1. Team Leader, 1.0 FTE
An experienced Master’s level clinician who is trained in working with individuals
experiencing FEP. He or she will be the primary contact person for clients and families
and will spearhead efforts to engage clients in treatment. The Team Leader’s primary
goals are to build a positive relationship with participants and assist them in developing
their abilities for illness self-management. The Team Leader will work with participants
using a shared decision-making process to develop and modify treatment plans. The
Team Leader will provide support, education, consultation, and basic services to
participants and their families. With younger individuals, work with families will be more
prominent since they play a pivotal role in the individuals’ lives during adolescence and
the first years of adulthood. The Team Leader will monitor, oversee, and supervise the
team-based process.
2. Supported Education and Employment Specialist, 1.0 FTE
A Bachelor’s level position; someone in this position should ideally have prior
experience as a supported education or employment specialist. He or she will focus on
assisting participants to continue, resume, or adapt their academic or vocational activities
successfully, using the IPS (individual placement and support) model.
3. Recovery Coach, 0.5 FTE
An experienced Master’s level clinician who will help clients clarify goals, cope with
stressful situations, interact more effectively with other people, and in general, overcome
barriers to their recovery. This is done within a framework that is empowering and
cultivates peer support through the use of structured behavioral interventions aimed at
learning new skills and supporting behavior change, including social skills training,
substance abuse treatment, behavioral activation, coping skills training, and psycho-
education.
4. Outreach and Referral Specialist, 0.5 FTE
The designated individual(s) should be a Master’s level clinician (or possess a higher
clinical degree) and the ability to identify primary psychosis and perform differential
diagnoses for symptom profiles related to psychosis. A program may choose to identify
persons within the clinical team to lead outreach and recruitment activities, or establish a
separate team of individuals who will only be responsible for such activities.
5. Psychiatrist, 0.2 FTE
He or she will be responsible for diagnosis, medical care needs, medication management,
and acute management of suicidality and safety concerns. Medication management will
be guided by a medication algorithm that provides information about evolving best
practices. A shared decision-making framework will be used.
29
Appendix 4: Background Readings and Resources - Team
National Alliance on Mental Illness (NAMI)
Information on First Episode of Psychosis
http://www.nami.org/template.cfm?section=First_Episode
Substance Abuse and Mental Health Services Administration (SAMHSA)
Recovery to Practice
http://www.samhsa.gov/recoverytopractice/
Choices in Recovery
http://www.choicesinrecovery.com/
Shared Decision Making
http://patients.dartmouth-hitchcock.org/shared_decision_making.html
Lived Experience:
Addington J, Coldham E, Jones B, et al. (2003). The first episode of psychosis: the experience of
relatives. Acta PsychiatrScand, 108, 285–289.
Compton MT and Broussard B. (2009). The First Episode of Psychosis: A Guide for Patients
and their Families. NY: Oxford University Press.
Deegan, PE (2007). The lived experience of using psychiatric medication in the recovery process
and a shared decision-making program to support it. Psychiatr Rehabil J, 31(1), 62–69.
Deegan, P. (1988). Recovery: the lived experience of rehabilitation. Psychosoc Rehabil J, 9(4),
11–19.
Leete, E. (1989). How I perceive and manage my illness. Schizophr Bull, 15(2), 197–200.
Saks, ER (2007). The Center Cannot Hold: My Journal Through Madness. New York: Hyperion.
Schiller L, and Bennett A. (1994). The Quiet Room: A Journey Out of the Torment of Madness.
NY: Warner Books.
Peers/Community:
The Temple University Collaborative on Community Inclusion of Individuals with Psychiatric
Disabilities
http://tucollaborative.org/index.html
The Institute for Recovery and Community Integration
http://www.mhrecovery.org/
30
Recovery Model and Implications for Treatment:
Bellack AS. (2006). Scientific and client models of recovery in schizophrenia: Concordance,
contrasts, and implications. Schizophr Bull, 32: 432–442.
Davidson L, Drake RE, Schmutte T, et al.(2009). Oil and water or oil and vinegar? Evidence-
based medicine meets recovery. Community Ment Health J, 45:323-332.
Davidson L, Harding C, Spaniol L, eds. (2005). Recovery from Severe Mental Illnesses:
Research Evidence and Implications for Practice. Volume 1. Center for Psychiatric
Rehabilitation Sargent College of Health and Rehabilitation Sciences Boston University.
Harding CM, and Zahniser JH. (1994). Empirical correction of seven myths about schizophrenia
with implications for treatment. Acta Psychiatr Scand Suppl, 384, 140–146.
Kreyenbuhl J, Nossel IR, and Dixon LB. (2009). Disengagement from mental health treatment
among individuals with schizophrenia and strategies for facilitating connections to care: A
review of the literature. SchizophrBull35(4), 696–703.
Melle I, Johannesen JO, Friis S, et al. (2006). Early detection of the first episode of
schizophrenia and suicidal behavior. Am J Psychiatry, 163(5), 800–804.
Trauma-Informed Care:
Morrison AP, Frame L, and Larkin W. (2003). Relationships between trauma and psychosis: A
review and integration. Br J Clin Psychol, 42 (Pt 4), 331–353.
Neria Y, Bromet EJ, Sievers S, et al. (2002). Trauma exposure and posttraumatic stress disorder
in psychosis: Findings from a first-admission cohort. J ConsultClinPsychol, 70(1), 246–251.
ShevlinM, DorahyMJ, and Adamson G. (2007). Trauma and psychosis: An analysis of the
National Comorbidity Survey. Am J Psychiatry, 164(1), 166–169.
Voices of Recovery videos
http://practiceinnovations.org/ConsumersandFamilies/ViewAllContent/tabid/232/Default.aspx
http://www.theannainstitute.org/TSA-ADULTS.htm
http://www.ptsd.va.gov/index.asp
Shared Decision Making:
Adams J R, and Drake R E. (2006). Shared decision-making and evidence-based practice. Comm
Ment Health J, 42(1), 87–105.
31
Deegan PE, and Drake RE. (2006). Shared decision making and medication management in the
recovery process. Psychiatr Serv, 57, 16361639.
Examples of decision aids in the public domain can be found at the following sites:
http://www.effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-
and-reports/?pageaction=displayproduct&productID=10 decision aid on
antidepressants
http://www.healthwise.net/cochranedecisionaid/Content/StdDocument.aspx?DOC
HWID=za1120 - decision aid on whether to use medicine to help sleep
http://www.healthwise.net/cochranedecisionaid/Content/StdDocument.aspx?DOC
HWID=zw1124&SECHWID=zw1124-Intro - decision aid on whether to use
medicine to quit smoking
http://www.healthwise.net/cochranedecisionaid/Content/StdDocument.aspx?DOC
HWID=aa45364&SECHWID=aa45364-Intro - decision aid for using medicine to
treat PMS
http://mentalhealth.samhsa.gov/clientsurvivor/shared.asp - includes SAMHSA
“Cool Tools”
Suicide / Safety Planning:
CaldwellCB, and Gottesman JI. (1990). Schizophrenics kill themselves too: A review of risk
factors for suicide. SchizophrBull16(4): 571–589.
Drake R E, Gates C, Cotton PG, et al. (1984). Suicide among schizophrenics: who is at risk? J
Nerv MentDis, 172, 613–617.
Harkavy-FriedmanJM and NelsonEA (1997). Assessment and intervention for the suicidal
patient with schizophrenia. Psychiatr Q, 68(4): 361–375.
Harkavy-Friedman JM, Restifo K, Malaspina D, et al. (1999). Suicidal behavior in
schizophrenia: characteristics of individuals who had and had not attempted suicide. Am J
Psychiatry, 156(8): 1276–1278.
Harkavy-Friedman, JM,Kimhy D, Nelson, EA, et al. . (2003). Suicide attempts in schizophrenia:
the role of command auditory hallucinations. J Clin Psychiatry, 64(8): 871–874.
Harkavy-Friedman JM, Nelson EA, Vernarde DF, et al. (2004). Suicidal behavior in
schizophrenia and schizoaffective disorder: examining the role of depression. Suicide Life-
ThreatBehav, 34(1): 66–76.
Mamo DC. (2007). Managing suicidality in schizophrenia. Can J Psychiatry, 52: 59–70.
Melle I, Johannesen JO, Friis S, et al. (2006). Early detection of the first episode of
schizophrenia and suicidal behavior. Am J Psychiatry, 163: 800–804.
32
Stanley B andBrown GK. (2008). Safety planning: An intervention to mitigate suicide risk.
Washington, D.C: Veterans Health Administration Publication.
Stanley B, Brown F, Brent D, et al. (2009). Cognitive behavior therapy for suicide prevention
(CBT-SP): treatment model, feasibility and acceptability. JAmn AcadChild AdolescPsychiatry,
48(10): 1005–1013.
33
Appendix 5: Background Readings and Resources - Recovery Coach Training
VA VISN5 MIRECC Social Skills Training Program
http://www.mirecc.va.gov/visn5/training/social_skills.asp
The Institute for Recovery and Community Integration
http://www.mhrecovery.org/
Motivational Interviewing
http://www.motivationalinterview.org/
SAMHSA Co-occurring Disorders
http://www.samhsa.gov/co-occurring/
Person Centered Planning / Strengths Based Care
http://www.ncdhhs.gov/mhddsas/statspublications/Manuals/pcp-instructionmanual2-3-10.pdf
Stages of Change
http://www.aafp.org/afp/2000/0301/p1409.html
Substance Abuse Treatment Resources
http://casaa.unm.edu/
Addington J, Penn D, Woods SW, et al.(2008). Social functioning in individuals at clinical high
risk for psychosis. Schizophr Res, 99(1-3), 119–124.
Ballon JS, Kaur T, Marks .I, et al.(2007). Social functioning in young people at risk for
schizophrenia. Psychiatry Res, 151(1-2), 29–35.
Bellack AS. (2004). Skills training for people with severe mental illness. Psychiatr RehabJ, 27,
375–391.
Bellack AS, Bennett ME, and Gearon JS. (2007). Behavioral Treatment for Substance Abuse in
People with Serious and Persistent Mental Illness: A Handbook for Mental Health Professionals.
NY: Taylor and Francis.
Bellack AS, and DiClemente CC. (1999). Treating substance abuse among clients with
schizophrenia. PsychiatrServ, 50(1), 75–80.
Bellack AS, and Gearon JS. (1998). Substance abuse treatment for people with schizophrenia.
Addictive Behaviors, 23(6), 749–766.
Bertrand MC, Sutton H, Achim AM, et al. (2007). Social cognitive impairments in first episode
psychosis. SchizophrRes, 95(1-3), 124–133.
Bradizza CM, Maisto SA, Vincent PC, et al.(2009). Predicting post-treatment-initiation alcohol
34
use among clients with severe mental illness and alcohol use disorders. J Consult Clin Psychol,
77(96), 1147–1158.
Carey KB, Leontieva L, Dimmock J, et al. (2007). Adapting motivational interviewing for
comorbid schizophrenia and alcohol use disorders. Clinical Psychology: Science and Practice,
14, 39–57.
Compton MT, Kelley ME, Ramsay CE, et al. (2007). Association of pre-onset cannabis, alcohol,
and tobacco use with age of onset of prodrome and age ot onset of psychosis in first-episode
clients. Am J Psychiatry, 166(11), 1251–1257.
Dixon LB, Dickerson FB, Bellack AS, et al. (2010). The 2009 schizophrenia PORT psychosocial
treatment recommendations and summary statements. Schizophr Bull, 36(1), 48–70.
Drake RE, O’Neal EL, and Wallach MA. (2008). A systematic review of psychosocial research
on psychosocial interventions for people with co-occurring severe mental illness and substance
use disorders. Journal of Substance Abuse Treatment, 34(1), 123–138.
Gearon JS, Kaltman SI, Brown C, et al.2003). Traumatic life events and PTSD among women
with substance use disorders and schizphrenia. PsychiatrServ, 54(4), 523528.
Kurtz MM and Mueser KT. (2008). Meta-analysis of controlled research on social skills training
for schizophrenia. J Consult Clin Psychol, 76, 491–504.
Miller WR, and Rollnick S. (1991). Motivational Interviewing: Preparing People to Change
Addictive Behaviors. New York: Guilford Press.
Miller WR, and Rollnick S. (2002). Motivational Interviewing: Preparing People for Change
(2nd ed.). New York: Guilford Press.
Mueser KT, and Bellack AS (1998). Social skills and social functioning. In K.T. Mueser and N.
Tarrier (Eds.), Handbook of Social Functioning in Schizophrenia. Needham Heights, MA: Allyn
& Bacon (pp. 79-96).
Mueser KT, Yarnold PR, Levinson DF, et al.(1990). Prevalence of substance abuse in
schizophrenia: Demographic and clinical correlates. SchizophrBull, 16, 31–56.
Mueser K T, Bennett M, and Kushner MG. (1995). Epidemiology of substance use disorders
among persons with chronic mental illnesses. In A. F. Lehman and L. B. Dixon (Eds.), Double
Jeopardy: Chronic Mental Illness and Substance Use Disorders, Vol. 3, (pp. 9–25). Longhorne,
Pa: Harwood Academic Publishers.
Mueser KT, Noordsy D L, Drake R E, and Fox L. (2003). Integrated Treatment for Dual
Disorders: A Guide to Effective Practice. New York: The Guilford Press.
Pilling S, Bebbington P, Kuipers E, et al (2002). Psychological treatments in schizophrenia: II.
35
Meta-analyses of randomized controlled trials and social skills training and cognitive
remediation. Psychol Med, 32(5), 783–791.
Reiger DA, Farmer ME, Rae DS, et al. (1990). Comorbidity of mental disorders with alcohol and
other drug abuse results for the epidemiologic catchment area (ECA) study. JAMA, 264, 2511–
2518.
Sullivan WP, and Rapp CA. (1994). Breaking away: The potential and promise of a strengths-
based approach to social work practice. In R.G. Meinert, J.T. Pardeck, & W.P. Sullivan (Eds.),
Issues in social work: A critical analysis (pp. 83–104). Westport, CT: Auburn House.
Tenhula WN and Bellack AS. (2008) Social Skills Training. In K. Mueser & D. Jeste (Eds.)
Clinical Handbook of Schizophrenia. Guilford Press, New York.
Weick A, Rapp C, Sullivan WP, et al. (1989). A strengths perspective for social work practice.
Social Work, 34, 350–354.
Whelan G. (2007). Impact of severity of substance use disorder on symptomatic and functional
outcome in young individuals with first-episode psychosis. J Clinl Psychiatry, 68(5), 767–774.
36
Appendix 6: Background Readings and Resources - Supported Employment and
Education
Supported Employment
Dartmouth IPS Supported Employment Center
http://www.dartmouth.edu/~ips/
SAMHSA
http://store.samhsa.gov/product/Supported-Employment-Evidence-Based-
Practices-EBP-KIT/SMA08-4365
Becker D, and Drake R. (2003). A Working Life for People with Severe Mental Illness.
NewYork: Oxford Press.
Drake R E, McHugo GJ, Becker D R, et al. (1996). The New Hampshire study of supported
employment for people with severe mental illness. J Consult Clin Psychol, 64, 391–399.
Killackey E J, Jackson H J, and McGorry P D. (2008). Vocational intervention in first-episode
psychosis: Individual Placement and Support.versus treatment as usual. BrJ Psychiatry, 193,
114–120.
Nuechterlein H, Subotnik K L, TurnerL R, et al. (2008). Individual placement and support for
individuals with recent-onset schizophrenia: integrating supported education and supported
employment. Psychiatr Rehabil J, 31(4), 340–349.
37
Appendix 7: Vignettes to Use in Team Training
Note: The goal in using vignettes is to demonstrate correct and incorrect ways of completing a
needs assessment with a young adult client and his or her family member. Discussion of the
vignette included all team members as a way to identify the important administrative and
personal aspects of the needs assessment process.
38
Vignette 1: Addressing Various Treatment Foci
Context/Details:
1) Review the summary of the needs assessment. The team as a whole can address relevant
considerations and issues relevant to their work as a team, as well as how they would
engage the client in moving forward with treatment planning and delivery of related
supports and services.
2) Next each break-out team can meet separately to discuss how they would address the
relevant needs and issues summarized in the assessment summary.
First group: Psychiatry and Medication Specialists
Second group: IPS team
Third group: RCs
Fourth group: Team Leaders (with consideration of range of treatment foci
including family, trauma, safety planning, housing/income,
wellness self-management, etc.)
3) Next the full group will re-assemble for a “mock” team meeting. Participants will be
charged with discussing how to coordinate/sequence/prioritize the various treatments and
services and engage the client in the development of a full and integrated treatment plan.
We also use this as a learning opportunity to discuss the challenges of working as a team.
Summary of Needs Assessment:
A 23-year-old woman was referred to the RAISE Connection Team at discharge from a 2-week
hospitalization for treatment of her first psychotic episode. She completed her first round of
meetings with various team members and the following information was collected as part of her
initial needs assessment. Consideration of this “report” should be discussed from the perspective
of each team so that each team can focus on and explore what services it has to offer and how
they might be presented to the client and his/her family.
Medication: The client had a favorable therapeutic response to oral risperidone and received an
injection of risperidone micorspheres (Risperdal CONSTA) 25 mg IM just before discharge. At
her first team meeting, the client reported that she has been sleeping well, that the voices are
greatly diminished and no longer intrusive, and that she feels safe again. However, she reported
concern about weight gain and stated that she was distressed by this. She also expressed concern
that she is pregnant because her menstrual period has not occurred this month; she denies recent
sexual activity.
Wellness Management: The client is concerned about recent weight can and also expressed
interest in getting fit and learning how to eat better. She also noted that she would like to learn
more about stress management.
Education and Employment: The client has a GED. She reported an interest in considering going
39
to a local community college. She also noted that she is tired of not having much money and
expressed interest in getting a job. She has only had a few part-time jobs and expressed anxiety
about the prospect of entering the job market.
Family Support: Client lives with her mom and step-dad. She has no siblings and reports having
no friends. She sees her biological father only about once or twice a year.
Housing and Income: Client lives with her mom and step-dad but reports that she is not happy
there and that her step-dad creeps her out. She has no health insurance and no source of
income. Her biological father, who lives out of state, provides her with intermittent financial
support.
Substance Abuse: Client smokes 2 packs of cigarettes a day. She reports feeling ambivalent
about quitting. She knows she “should” but is not sure she’s ready or able to.
Trauma: Client has hinted she may have been sexually abused as a child. She is unwilling to
discuss this but has referenced “bad” experiences that leave her feeling freaked out about getting
involved with anyone sexually. She also witnessed a stabbing in her neighborhood when she was
13 and says that she prefers to hang at home because it’s safer than dealing with her
neighborhood.
Safety: Client was actively suicidal at the time of her hospitalization. She currently notes that she
no longer is pre-occupied with wanting to end her life and that she only intermittently has
thoughts about hurting herself. She says that she has no current plans to hurt herself.
40
Vignette 2: How to Engage the Full Team and Client in
Coordinated Treatment Planning
Context/Details:
1) Review the summary of the needs assessment. The team as a whole can address
considerations and issues relevant to their work as a team, as well as how they would
engage the client in moving forward with coordinated treatment planning and delivery of
related supports and services.
2) Next each break-out team can meet separately to discuss how they would address the
relevant needs and issues summarized in the assessment summary.
First group: Psychiatry and Medication Specialists
Second group: IPS team
Third group: RCs
Fourth group: Team Leaders (with consideration of range of treatment foci
including family, trauma, safety planning, housing/income,
wellness self-management, etc.)
3) Next the full group will re-assemble for a “mock” team meeting. Participants will be
charged with discussing how to coordinate/sequence/prioritize the various treatments and
services and engage the client in the development of a full and integrated treatment plan.
We also use this as a learning opportunity to discuss the challenges of working as a team.
Summary of Needs Assessment
An 18-year-old male was referred to the Connection Team by the psychologist embedded in his
inner-city public high school, where he was struggling to complete his junior year. He lives with
his grandmother and two half-siblings. He and his grandmother have already met with the Team
Leader and Team Psychiatrist but both have been reluctant to meet with the other team members.
Medication: After 4 4-week trials each of perphenazine (up to 16 mg. daily at which coarse
EPSE were apparent) and risperidone (up to 6 mg daily at which he appeared slightly akinetic
and complained of sexual dysfunction), this young man continues to be preoccupied with voices
that were a central feature of his first psychotic break 2 months ago without any abatement in
frequency and intensity. Of note, his biological mother (who is currently incarcerated) and his
grandmother both have Type II diabetes mellitus.
Wellness Management: The client is overweight, has a very poor diet, and is generally inactive.
He reports significant difficulties with sleep. Although he huffed glue regularly for several years
and reported a history of poly-substance use, he reports that he has not used any substances for
the past 6 months. He also has moderate to severe asthma.
Education and Employment: The client repeated the third grade and has a long history of
learning disabilities. His current IEP provides access to a school counselor and additional
41
educational services. He has been having difficulty in school this current year and has missed
several days. He reports that he hates school and would like to drop-out. He has never held a
paying job.
Family Support: Client lives with his grandmother and two half siblings (ages 16 and 11). His
grandmother works full time as nurses’ aide with a rotating day-evening work schedule. The
client’s mother is currently in jail.
Substance Abuse: As noted, the client acknowledged that he huffed glue regularly for several
years and reported a history of poly-substance use. He reports that he has not used any
substances (other than cigarettes) for the past 6 months. The client smokes about a pack of
cigarettes a day.
Trauma: Client was removed from his mother’s care by Child Protective Services at age 4
secondary to investigated reports of neglect and physical abuse. He lived in one or two foster
care placements until moving in with grandmother where he has remained for the past 10 years.
Safety: Client reports hearing command hallucinations to hurt himself. Although he says he is
able to ignore these demands and that he is not suicidal, he reports feeling concerned that the
voices will get stronger and more powerful as he gets older.
42
Vignettes Related to Psychopharmacology for Team Psychiatrist Training
Psychopharm Vignette 1: A 23-year-old woman is referred to the Connection Team at
discharge from a two week hospitalization for treatment of her first psychotic episode. She had a
favorable therapeutic response to oral risperidone and received an injection of risperidone
microspheres (Risperdal CONSTA) 25 mg IM just before discharge. When you first meet her in
clinic, she and her family report that she has been sleeping well, that voices are rare and not
intrusive, and that she feels safe again. However, she reports that she has gained weight and that
her clothes have become too tight. She also expresses concern that she is pregnant because her
menstrual period has not occurred this month; she denies sexual activity.
Issues to discuss: Prolactin, long-acting injected med, birth control, convincing
patient/family to consider a switch in medications
Psychopharm Vignette 2: After 4 week trials each of perphenazine (up to 16 mg daily at which
coarse EPSE were apparent) and risperidone (up to 6 mg daily at which he appeared slightly
akinetic and complained of sexual dysfunction), this 18-year-old man continues to be
preoccupied with voices that were a central feature of his first psychotic break 2 months ago. He
has been unable to engage with vocational and social programming. You consider trials of
olanzapine, and later clozapine, if the olanzapine fails. His mother has Type II diabetes mellitus.
Issues to discuss: Metformin (preemptive or reactive), fish oil, exercise
Psychopharm Vignette 3: A 22-year-old man with first episode psychosis and ongoing abuse of
marijuana and alcohol remains unable to engage in programming despite being assured
antipsychotic treatment with a long-acting injected medication. He repeatedly fights with his
step-father and has made two suicide attempts. He has not engaged in substance use treatment
despite numerous attempts
Issues to discuss: Hospitalization, clozapine
Psychopharm Vignette 4: A 19-year-old woman responded favorably to oral fluphenazine
during a hospitalization for her first psychotic episode. At discharge, she was given an injection
of fluphenazine decanoate 25 mg IM. At her first visit, she is akinetic and has clear cog-
wheeling. Her family report she sleeps 18 hours per day. They want her taken off this “poison.”
Issues to discuss: sensible dosing, rapid interventions—aripiprazole, family: all meds can
be toxic if dosed incorrectly
43
Appendix 8: Scripts for Training Role Plays
Note: Role plays contain scripts for encounters done “well” and done “poorly.It is
recommended that the poor example be done first, with the discussion focused on what made it
poor. This should be followed by the done “well” example and discussion of what was improved
and how the interaction was more consistent with the principles of the recovery model, shared
decision making, and compassionate interacting with young people with FEP.
44
Role Play 1: Young Adult, First Meeting with Team Leader for Initial Needs Assessment
Context/Details: John is a 22-year-old single man who was working full time as a front desk
clerk for a hotel until 4 months ago, when he started showing increasing signs of psychosis. He
had never been a very outgoing person, but he was able to interact appropriately with hotel
guests until about a year ago. His job involved answering the phones, taking reservations,
greeting and checking in guests, fielding customer service complaints, and assisting with
luggage. He sometimes had difficulty dealing with guests complaints, especially when the guest
was angry. His supervisor had to step in on occasion to help, but she was happy with his work
until about a year ago.
About a year ago, John became more sensitive about customer complaints at the hotel and
sometimes felt that the customers were blaming him personally for problems they were having
with their rooms. He thought that perhaps he was not concentrating as well as he had in the past,
and felt this might be contributing to mistakes he sometimes made in assigning rooms and
working on billing for hotel charges. However, John increasingly felt that customers were being
unreasonable in their complaints. He started trying to avoid those customers who he thought
were troublemakers. This caused additional trouble when these customers complained to his
supervisor. She tried to work with John to help him improve his interactions with customers.
About 4 months ago, John started believing that some hotel customers were deliberately trying to
trick him into making mistakes on their hotel bills, which they would then blame on him and ask
him to correct. John started hearing an accusatory voice talking to him while he worked at the
hotel, which he attributed to hotel customers who were trying to influence his mind and get him
fired. Then the voices started occurring when John was at home as well, so John got increasingly
upset. John called the police to report that some guests at the hotel were working together to
force him to make errors on the job and get him fired. John was then hospitalized for his
paranoid delusions and auditory hallucinations.
John was referred to the Connection Team for eligibility screening. He still thinks that customers
at the hotel were the main cause of his problems. He is aware, however, that his concentration
has been poor and that he has been very upset with the things that have been happening to him.
John has been given antipsychotic medication, but he is not sure that it is doing him any good
and wonders whether he needs to continue taking it. He would just like to put the whole period
behind him and get back to work as soon as possible.
Role play that models the encounter “done poorly”:
Team Leader: Thanks for coming in today to meet with me. I want to use our time today
to complete a needs assessment so that I can put your treatment plan together. I apologize
in advance for the number of questions I’m going to ask, but we’ve got to get through this
full assessment today (hold up papers). Ok let’s get started. I see from your intake form
that you were hospitalized 4 months ago. Can you tell me why you were hospitalized.
John: I was having concerns about my job. I was only in the hospital for a few days,
though.
45
Team Leader: That’s good. Do you remember what medications you were taking when
you left the hospital?
John: Yes. They started me on something called Respira something
Team Leader: Riperidone?
John: Yeah, that’s it.
Team Leader: Are you still taking that medicine.
John: Yes…well sort of. I mean, I’m not sure if I really need it.
Team Leader: Sounds like medication compliance is something that we should put on
your treatment plan. I will let your psychiatrist know so you can talk to her about why
taking medicine is so important. I can also work with you to helpwith your medication
compliance.
John: Uh, ok. I really don’t think I want to take the medicine though. I don’t think I need
it. Do you think I can stop taking it?
Team Leader: Well…. I can’t really answer that question. Again, I know that you will be
meeting your psychiatrist soon, so I suggest you discuss that issue with her. OK. Great.
Now back to your last hospitalization. What symptoms were you experiencing at that
time.
John: Well, I was really having trouble at work.
Team Leader: That’s right you mentioned that. Were you having any specific symptoms
that were making it difficult for you at work? For example, was your mood a problem, or
were you having any unusual thoughts or concerns, or feeling very distracted, things like
that.
John: I was having a hard time dealing with difficult guests at the hotel where I work.
Still a lot of stuff going on there but I’m hoping that it will get better soon.
Team Leader: OK. Since you are going to be meeting with the psychiatrist too, so you
can talk more about specific symptoms when you meet with her. Ok. Great, now the next
set of questions is about substance abuse. Are you using drugs or alcohol?
John: I smoke marijuana sometimes.
Team Leader: How often?
John: A couple of times a week. Usually just at night before I go to bed.
46
Team Leader: Any other substances?
John: No.
Team Leader: Do you smoke cigarettes?
John: Yes.
Team Leader: How much do you smoke?
John: About a pack a day.
Team Leader: Ok. We don’t have time today, but it sounds like we may want to focus on
helping you with your smoking both cigarettes and marijuana. I know that these
substances can interfere with one’s life and of course as you know they both present
significant health risks too.
I can also tell you about various resources and treatments to help with smoking cessation
next time we meet. OK. Let’s see (while turning pages) Let’s move on. Next, I’d like to
ask about your educational background. How far did you get in school?
John: I graduated from high school. I also took some classes at Washington County
Community College.
Team Leader: That’s great. What are your goals regarding your education?
John: Well, I don’t know.
Team Leader: That’s OK. Next time we meet we can talk more about this and get a feel
for your ideas about this. OK…regarding employment, you mentioned that you work the
front desk at the Marriott Courtyard in Washingtonville.
John: That’s right.
Team Leader: Great. How long have you been working there?
John: About a year now.
Team Leader: That’s great. I do know, however, that you said things have been difficult
at work for you lately. I’m sure we will talk more about this as we get to know each
other. Part of learning how to live with mental illness is learning how it will challenge
you at work and in your relationships, etc. As you learn more about living with your
illness we can work together to help you make sure that you’re prepared to deal with
these challenges.
(NOTE FROM FACILITATOR)….”Alright, we’re now going to fast forward and re-join this
47
meeting right before it wraps up.”
Team Leader: Terrific. I apologize again for moving across so many topics but I wanted
to make sure that we completed the assessment. You were very helpful. I feel I learned
about you and look forward to working with you!
Facilitated Discussion re: what was missing/done poorly:
This should include review/application of intervention principles/clinical concepts etc.
(SDM, recovery-oriented, active/focused Stance, use of open-ended explorations,
flexibility and consistency, autonomy/availability).
Role play that models the encounter done “well”:
Team Leader: Hello (reach out to shake client’s hand). Very nice to meet you in person.
OK, as I mentioned what I hope to do today is learn more about how things are going for
you and how we can be of help to you.
John: OK.
Team Leader: Great. OK. You talked a lot about your job when we spoke briefly on the
phone. Sounds like work is a big and important part of your life right now.
John: I guess so. Although it’s stressing me out and really hoping I don’t get fired.
Team Leader: OK let’s start there. Help me understand how the stress has interfered with
things at work.
John: Well. I’ve been having trouble with hotel guests. I get angry all the time cause
they’re deliberately trying to make my job harder and get me fired.
Team Leader: Tell me more about feeling angry and how that affects your job.
John: I get so angry that I get confused and have trouble concentrating and my thoughts
start racing and I get all pre-occupied.
Team Leader: Those sound like they would make any job difficult. I guess step one is to
decide if those are problems you want to address right now.
John: Well I don’t want to lose my job.
Team Leader: I hear that. That sounds like a clear goal. Let’s talk about what things
might be helpful in working on this goal.
John: OK. How do we do that.
48
Team Leader: Well, we can start by talking about options and then review what the pros
and cons are for those options. For example, medication is one option. We can also figure
out together who else you’d like to have involved in making decisions and what your
preferences are so that you can identify how you’d like to proceed.
John: I’m not sure I want to take medication at all. I’m currently taking those pills they
started me on when I was in the hospital and I’m gaining all this weight and not sure I
even really need em, let alone what I’m taking them for.
Team Leader: You don’t need to make any decisions today. Does sound like you want to
explore this further, though. Also sounds like you may have some questions, concerns or
want more information. I know that you are going to be meeting with the psychiatrist
soon so we can talk more at our next meeting about how to prepare for that meeting and
what to expect so that you can be fully involved in making decisions about medication.
John: OK.
Team Leader: Great. I also want to make sure we spend some time talking about what
you’ve been doing or used to do to help deal with the stress you’ve been talking about.
John: You’re not gonna wanna hear this, but smoking a joint before going to bed helps
and smoking cigarettes also helps me chill out.
Team Leader: That’s helpful to know, thanks. Any down sides or concerns you have
about smoking a joint or smoking cigarettes.
John: Well, in addition to the money, the pot does sometimes make me kinda paranoid.
Team Leader: Ok. So just like with all things there are going to be pros and cons to
discuss for this too. Are you OK keeping this on our agenda as something to check in on?
John: Well. I guess. Although I am not feeling ready to quit.
Team Leader: OK. I hear that. Thanks for permission to check back in with you though.
John: Whatever.
Team Leader: OK in addition to identifying things you want to work on, I want to make
sure we also make time to talk about what your life goals are and how you can best work
toward reaching those goals.
John: Well, if I don’t shape up, I’m gonna lose my job. I’m also scared that things are
going to get worse. I don’t even understand why this is getting worse.
Team Leader: I hear that you’re stressed about that. I also hear that you have a lot of
questions. That’s very normal. Part of our journey is making sense of how our lives
49
unfold. I look forward to exploring those questions with you and offer assistance to help
you move forward with you goals and achieve the full and rich life that you deserve. I
know we need to end for today, but thanks for getting started with me. As we move
forward know that I and others on the team will be available to meet with you to help you
stay connected to your goals and the services we have available here. We are also
available to help you identify and choose what you’d like to work on, and get the
supports you need to. Again, thanks for coming today.
Facilitated Discussion re: what was done well: This should include review/application of
intervention principles/clinical concepts etc. (e.g., Shared Decision Making , recovery-oriented,
active/focused stance, use of open-ended explorations, flexibility and consistency,
autonomy/availability).
50
Role Play 2: Follow-up Meeting with a Teenager and Team Leader to
Formulate/Develop Treatment Foci/Goals
Context/Details: Max is a 16-year-old 10
th
grade boy who was recently discharged from the
hospital where he had been admitted for suicidal ideation and substance abuse after a 3 week
hospitalization. Although he stated that he was abusing multiple substances, his urine tox screen
was negative and also had been negative when he was hospitalized 2 months previously for
similar complaints. His parents noted that he has become increasingly withdrawn over the past
two years and now only interacts with a few friends. He has always been hard to motivate to do
schoolwork, but his grades slipped from mostly B’s to C’s and D’s over the past year. Last
summer he worked as an assistant at a drama camp for elementary age kids and enjoyed it, but he
did not apply this year. He did not run track this year, but thinks he might continue cross country
in the fall.
During his evaluation, he admitted to almost constantly feeling like his mind was arguing with
itself, hearing an old woman talking to him saying what a bad person he is, feeling someone
standing behind him, and seeing odd light trails that others do not see. He notes that he is
concerned that people in the government and in his neighborhood are monitoring him and want
to put him in jail. He feels that if he stays in the house with the curtains closed and lights off it
will be harder for them to catch him. He also changes his email frequently and avoids talking on
the phone to make it harder to catch him. He sometimes gets messages from the TV. He reports
recent suicidal thoughts but has no current plan. He denies homicidality but does not know what
he would need to do if the neighbors or government entered his house. He reports that it has been
hard to pay attention in school with his head arguing and that he is not sure that he will pass
some of his classes.
At the time of his recent discharge, he was not able to identify any activities that he was sure he
would enjoy. He was open to the idea of trying the drama class again. He continued to hear the
woman especially late at night or when he was alone for an extended period of time, but knew
others thought she was not real. He knew others thought the government was not interested in
him but was not sure they would really know and continued to be concerned about this. He still
preferred to be alone and continued to maintain that he had been abusing drugs.
Client and his mother return after 3 weeks for another team meeting. In the meantime, they
have met with the Team Leader three times once in the family home, with the psychiatrist once
and with the supported education worker once. The supported education worker has observed the
client at school and obtained additional information from school staff. Skills specialist has not
had any separate meetings with client or his family.
The Team Leader notes that the client seems to get upset when his mother, father, or brother
express concern about him by clenching his fists or looking down at the floor. He does seem to
be relaxed when the family dog sits by him or he is listening to music. He also seems more
agitated when news shows or talk shows are on TV. She has gone over the shared decision
making card with him and his parents. His parents have told the Team Leader that he can be very
irritable if they ask about his homework or try to get him to sit with them after dinner. They also
note that he is eating a lot and his clothes are getting tight. At times he seems very anxious and
51
preoccupied, and occasionally, he will talk quietly to himself but they are unsure what he is
saying. Max’s brother notes that Max is being teased at school, and Max reports that other
students comment on his weight gain and untidy appearance. Other kids accuse him of using
drugs, and most kids who are in classes with him seem to be afraid of him.
The supported education worker notes that the client currently is failing one class and has C’s
and D’s in the others. His first period teacher (English) said he frequently puts his head down on
the desk and appears to be asleep. He is not contributing to discussions in that class or in world
history. If pushed in class, he begins muttering to himself or clenching his fists. He is also having
trouble turning in homework and has particular trouble in geometry with understanding what to
do or what formulas to use. He eats by himself in an isolated hallway. He will sometimes go
watch people on the track after school. He reports difficulty paying attention in school, with his
arguing head and that he is not sure that he will pass some of his classes.
He notes that he continues to hear the woman especially late at night or when he is alone for an
extended period of time, but knows she is not real. He knows others think the government is not
interested in him but is not sure how they would really know and continues to be concerned
about this. He still prefers to be alone and continues to maintain that he had been abusing drugs.
He has been taking his risperidone, but has noted some sleepiness that makes school harder. He
is worried about his weight.
Role play that models the encounter “done poorly”:
Team Leader: Welcome to the meeting. You are really lucky that everyone could come.
We wanted to see how things were going and what else needs to be done. You know
everyone here don’t you?
Max: Uh, I guess so?
Mother: I don’t remember everyone’s names and I don’t think I know the person on your
left.
Team Leader: Oh don’t worry about remembering everyone’s names. We know this is a
stressful time for you. This is Sue, the skill trainer. Now let’s see how things are going.
Max, do you have any things that you especially want to work on?
Max: Not really.
Team Leader: Ok, Max are you having any thoughts about hurting yourself or someone
else now?
Max: Not really.
Mother: But his brother did tell me that some of the kids were afraid of him.
52
Team Leader: Are you afraid of him and have you had any complaints from school
staff?
Mom: No, but he does ball his fists up sometimes.
Team Leader: Max, would you tell someone if you were really feeling like hurting
someone.
Max: Probably.
Team Leader: Good. Then it probably isn’t a concern. Probably just their lack of
awareness about schizophrenia. How are your symptoms Max?
Max: They seem a little bit better but I’m still having problems at school.
Psychiatrist: That is great. Are you having any stiffness, any restlessness?
Max: No.
Mother: He is eating a lot.
Psychiatrist: Don’t worry. We can add a side effect medicine called metformin that I’ll
call in. And you should encourage him to eat more fruits. Any other concerns?
Max: Uhh, nah.
Team Leader: OK, are you doing things with friends or doing any things you enjoy.
Max: I talked to some guys on the track team the other day and that was ok. I like to play
my games.
Team Leader: Great. Keep working on that. Ok. Now let’s hear what the education
specialist has to say about school.
IPS: Well, I’ve observed Max at school and talked to his teachers. They all seem very
willing to help him but feel like he has to do his part. Max, they are concerned that you
aren’t turning in a lot of your work. Can you try to do better with that? I think it would
really help you to use a planner to keep track of your assignments. Will you try that?
Max: I am trying. I already use a planner, but I keep losing it. It is really hard for me to
pay attention sometimes because of the arguments and the noise.
IPS: We can have you sit in the front of the class so you won’t get so distracted. We’ll
have to set up an IEP meeting. I know you are failing geometry, so I’ll get you a tutor for
that. The other thing the teachers brought up was your muttering under your breath and
being more fidgety at times. I know that it is hard to do what adults ask you to do, but
53
you really have to or you’ll be suspended. Can you try to be more respectful?
Max: I guess so, mumbles, “I am respectful, it’s the other people who aren’t.”
Team Leader: Let’s see what’s left. No issues with family support, money, trauma or
substance use so I guess we’re done. Does anyone want to add anything or have any
comments? OK, well see you in 2-3 weeks. We’ll call to set something up. Thanks. Bye.
Facilitated Discussion re: What was Missing/Done Poorly:
This should include review/application of intervention principles/clinical concepts etc.
(e.g., SDM, recovery-oriented, active/focused stance, use of open-ended explorations,
flexibility and consistency, autonomy/availability).
Consideration of intervention components reviewed during previous session (including
supported employment/education, social skills training/substance abuse, medication
adherence, family support, etc.)
Role Play that Models the Encounter Done “Well”:
Team Leader: Welcome to the meeting. Thank you all for coming. Helping Max get
back to his usual self is going to take all of us working together as a team. We especially
need your input Max and Mrs. Brown. The rest of us are here to help you understand
what has happened with Max’s thoughts and feelings and to help you figure out ways to
make things work out better for him. We each have different experiences and skills that
can be helpful to young people in situations like Max’s, but everyone is unique and we
need the two of you to tell us what is important to you and what you want to do. I know
you have met most of the people here, but I wanted to have us all go around and
introduce ourselves again and tell you a little bit about what we can help you figure out.
Team goes around and introduce themselves and briefly describes the kinds of services
they can provide and the kinds of problems they can help with.
Team Leader: This meeting is really to make sure we are going in the right directions
and that you two don’t have any other things that you want to work on right now or that
other people on the team haven’t noticed things that it might be helpful to consider. Max,
how do you think things have been going the last few weeks?
Max: Uh, I don’t know. It has been hard going back to school and everybody gets on my
case all the time. But my brain isn’t arguing with itself as much and I’m not hearing that
mean lady as much.
Team Leader: It’s great to hear that your symptoms are a bit better, but sounds like you
wish things were better with school and people getting on your case. Would you rather
talk about school or people getting on your case first.
Max: I don’t know. I guess school. There isn’t a lot of time left in the semester and I am
54
afraid Im going to flunk out.
Team Leader: Can you help us understand more about what has been hard at school?
Max: I feel like people are looking at me and talking about me and I just want them to
shut up.
Team Leader: That can be a really uncomfortable feeling. When does that happen?
Max: It happens a lot in class and there are these three guys who keep bothering me
during lunch. They keep calling me a druggie and a zombie.
Team Leader: Do you have any ideas why those guys are saying that?
Max: No.
Mom: Your brother had mentioned that you often talk about using drugs at school. I
know that you still talk about it at home sometimes. Do you think that has anything to do
with it?
Max: I don’t know.
IPS: I noticed that you often put your head down in class and don’t very often talk unless
you are upset and talking under your breath.
Max: It’s when I am upset that people start looking at me and talking about me in class.
They act like I am going to hurt them.
IPS: You can look a bit scary then because you also often make your hands into fists.
Maybe we could help you figure out a different way to deal with being upset. Would you
like that?
Max: Yeah. But it would be even better if people quit upsetting me by getting on my
case. I try to stay awake but in the morning it is really hard. Sometimes it is just too much
with my head arguing with itself and the teacher talking or asking why I don’t say
something or didn’t turn in my work. When that happens I just try to tune everything out,
if I try to keep up with the teacher I think my head will explode.
IPS: It sounds like there are lots of things going on at school. Let me see if I understand
what you have said so far. You are worried about your grades. There is a problem with
being sleepy in the morning. There are still problems with your head arguing that make it
hard to pay attention. There are problems with people pushing you to hard. There are
problems with people looking at you and talking with you that might have something to
do with talking about using drugs or looking scary when you are upset. Is there anything I
misunderstood or anything else going on at school that you want to tell us about.
55
Max: I guess that’s it. I just don’t feel like there is anyone there who cares or
understands.
IPS: I think there are several things that might help. Do you want us to tell you the things
that we can think of first and then you can choose how you want to approach it or do you
want to tell us what’s most important to try to fix right now?
Max: Ugh. I don’t know.
Psychiatrist: I think it sounds like we need to do some fine-tuning with your medicine so
you aren’t so sleepy in the morning and so you have more relief from the arguing. There
might be other things that are bugging you about your medicine too.
Mother: I’m worried about his weight and Max keeps saying he’s getting fat.
Psychiatrist: That is a very real concern, thanks for letting me know about it. Lets talk
more about the medicine in a bit. Right now lets hear from the rest of the team and see
what ideas they have for improving things at school.
RC: You mentioned you didn’t feel like there was anyone you could talk to at school?
Are you having a hard time reconnecting with your friends or were you thinking more of
a teacher or counselor?
Max: Both I guess. I tried saying hi to a few guys from the track team, but didn’t know
what to say next . . . I was afraid they’d think I was weird too . . . guess I’m just more
comfortable being by myself.
RC: We could probably work together on some strategies for reconnecting if you’d like.
I could also help you see if there are things that you are doing that you might not even be
aware of that make you look different or put people off. Kind of like the mumbling.
Max: Maybe.
RC: I could also help with the drug use issues. I’m not real clear what you are thinking
about that it sounds like you really don’t want people calling you a druggie. Just let me
or Team Leader know when you want to deal with that.
IPS: Sometimes we can set up systems at school to try to help with hard classes or
getting too much information at once or even things like homework or somebody to talk
to when you’re upset. We usually start with you and me and your Mom brainstorming
about things that might help, then have a meeting at school with your principal and
teachers to help them understand what’s going on and get their ideas for helpful things.
Would you be open to working together like that?
Max: Yeah.
56
Team Leader: Great we’ll set up a time to do that. I was wondering if there are any
times when you are feeling stressed that you have any thoughts about hurting yourself or
hurting someone else?
Max: Not really.
Mother: But his brother did tell me that some of the kids were afraid of him and
sometimes at home it is a little bit scary when he balls up his fists and is talking to
himself.
Team Leader: Max, can you help us understand what you are thinking and feeling at
those times?
Max: I just want to be left alone. I don’t want to hurt anyone although sometimes I think
people are trying to set me off so the government has an excuse to come get me. I don’t
want people to be afraid and I definitely don’t want the government involved.
Team Leader: It sounds like you really want to find a way to get some space but don’t
want people to be afraid. Is that something that we could help you work on finding a
way to get space when you need it so you don’t feel like people are pressuring you?
Sounds like we’ll need a system at home and at school.
Max: Yeah, that would be good.
Team Leader: So we’ve agreed to work on adjusting your medicine so you aren’t so
sleepy or hungry and so it works better, to work on some ways for you to get space when
you need it and to not get so upset or look scary, and ways to work on helping you
succeed in your classes and have people, both kids and grownups, who you can talk to at
school. We can make some decisions about the medicine right after this meeting, and set
up a time with the education specialist and later with your school in the next few days.
You and I can work on ways for you to get space so you don’t feel under so much
pressure from people. Maybe we can also identify some things that will help you know
when you are starting to feel pressured before it gets too bad or things that almost always
lead to feeling pressured. The skills trainer can also work with you on reconnecting to
people. Are there other things that you are concerned about right now Max? Or any
things you have questions about?
Max: No, this seems like a lot for now.
Team Leader: Mrs. Brown, are there any other concerns that you have that we should
address now, before we stop today?
Mother: No, I think we have set out the most urgent things. Can we set up the
appointments with you and education specialist now?
Team Leader: Why don’t you, I, and education specialist do that now while Max talks to
57
the psychiatrist by himself for a few minutes. We’ll also plan to get back together as a
whole team in 3-4 weeks to see how things are going. Thank you everybody for coming. I
think we’ve made a good start to helping Max get to where he wants to be. Max thanks
so much for helping us all figure out the things we can help you with. You did a great
job.
Facilitated Discussion re: What was done well:
This should include review/application of intervention principles/clinical concepts etc. (Shared
Decision Making, Recovery-oriented, Active/Focused Stance, use of open-ended explorations,
Flexibility and Consistency, Autonomy/Availability).
58
Appendix 9: Forms to Use for Team Training Topics
Client Shared Decision Making Card
General Educational Handouts for Clients and Families:
What is the Connection Team
What is Psychosis
Role of the Family
Recovery from Psychosis
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Client Shared Decision Making Card
The text below may be used to produce a laminated card for clients to have in order to prompt
them to engage in shared decision making during meetings with the team.
Side 1:
Tips for Talking About Important Decisions with Your Treatment Provider
PREPARE before you see your provider. Write down your questions and concerns so you
don’t forget.
TELL providers what is most important to you. Answer their questions honestly. This helps
them understand and respect what is important to you.
ASK for explanations or more information. When a provider offers a recommendation, ask
them to explain WHY they think it is right for you. What are the benefits? What are the costs?
What are the pros and cons?
SPEAK UP about your concerns and ask for options. For instance, if sexual side effects are
of concern, it’s okay to speak up and say you would like to find a medicine that does not have
these side effects.
REMEMBER what was said. Write down what you and the provider agreed to.
FOLLOW THROUGH with the decision you and the provider made. If you were not able to
follow-through, be honest about that. At the next appointment, report the good and the not-so-
good results of your decision.
Side 2:
For all major decisions regarding your medications, treatment, school, work, family, and so on,
ask yourself these questions:
When your provider gave you a recommendation, did they offer you onechoice, or options to
choose from?
Did your provider tell you about the pros and cons of each option?
Did you have a chance to ask your questions?
Did you have a chance to talk with important people like family before making your decision?
Did the provider listen to your opinion and what was important to you?
Did you have a say in what decision was right for you?
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The Connection Team
Helping People Live Their Best Lives
What Is the Connection Team?
The Connection Team is a program to help young people who are experiencing psychosis get
effective treatment so they can successfully reach their goals in life such as completing school,
getting a good job, living independently, and having rewarding relationships with friends.
What Does the Connection Team Offer?
The goal of the Connection Team is to provide hope and effective treatment so that young adults
with psychosis can achieve their goals in life. Rather than working with just one mental health
professional, we offer a collaborative team approach that relies on everyone’s strengths and
energy. The young adult with psychosis is a member of the team, along with the family when
possible and other mental health professionals. A Team Leader helps to keep everyone on the
team working together toward the young adult’s recovery. We use a “shared decision making
approach. That means that the young adult and the Team work together to decide on the best
treatment options. The treatment offered includes:
1. Comprehensive assessment of the young adult’s personal recovery goals to inform and guide
treatment.
2. Treatment and support from team members, including a doctor, mental health professionals,
and vocational specialists who have worked with people recovering from psychosis.
3. Counseling and educational support for family members focused on providing information
about psychosis and teaching family members how to assist young people in their recovery.
4. Coaching from a vocational specialist with expertise in helping young people identify and
reach their school and work goals.
5. Assistance with strategies for building healthy relationships and coping with problems in
positive ways.
6. Treatment and support for drug or alcohol problems.
61
The RAISE Connection Program:
Helping people live their best lives
What Is Psychosis?
Psychosis occurs when a person loses contact with reality. The word “psychosis” scares some
people, but it actually describes an experience that many people have. Three out of every 100
people experience psychosis at some time in their lives, and most of them recover.
What Are the Symptoms of Psychosis?
Psychosis can affect the way a person thinks, feels, and acts. Some common symptoms of
psychosis are:
Hallucinations can affect any of the five senses. People experiencing psychosis might
see, hear, taste, smell, or feel things that are not there, and they have difficulty believing
that their senses are tricking them.
Delusions are false beliefs that people hold strongly, despite all evidence that their beliefs
are not true. For example, a person experiencing a delusion might believe she is being
watched or followed.
Confused thinking occurs when a person’s thoughts don’t make sense. His or her
thoughts can be jumbled together, or they can be too fast or too slow. A person with
confused thinking can have a hard time concentrating or remembering anything.
Changes in feelings can include quick changes in mood. A person might also feel cut off
from the rest of the world, or feel strange in some other way.
Behavior changes often result in a person not bathing, dressing, or otherwise caring for
him- or herself as usual. Other behavior changes might involve behaviors that don’t make
sense, such as laughing while someone else is talking about something sad.
What Causes Psychosis?
Psychosis could have a number of different causes, and many researchers are working to
understand why psychosis occurs. Some popular ideas are:
Biological: Some people are more likely to develop psychosis because of their biology or
their heredity. Many cases of psychosis have been linked to problems with
neurotransmitters, the chemical messengers that transmit impulses throughout a person’s
brain and central nervous system. In addition, the relatives of people who experience
psychosis are more likely to experience psychosis themselves.
Other factors: A person’s first episode of psychosis can be triggered by stressful events or
by drug use (especially use of marijuana, speed, or LSD).
What Are the Phases of Psychosis?
Psychosis occurs in three predictable phases, but the length of each phase varies from person to
person. These phases are:
62
1. The prodromal phase is the early warning phase of psychosis, when a person experiences
some mild symptoms and vague signs that something is not quite right.
2. During the acute phase, a person clearly experiences one or more of the symptoms of
psychosis.
3. A person reaching the recovery phase, he begins to feel like him- or herself again.
Different people experience the recovery phase differently. With effective treatment,
many people who reach the recovery phase may never experience psychosis again.
How Is Psychosis Treated?
Most people recover from psychosis, and many do so with the help of treatment. This treatment
usually includes several parts:
Learning treatment options and working with professionals to determine which options are
right for you.
Working with a mental health professional to practice ways to cope when things feel bad.
Working with a doctor to determine how medications can help.
Working with professionals who specialize in helping individuals learn to manage everything
from relationships to jobs and school.
63
The RAISE Connection Program:
Helping people live their best lives
What Is Psychosis?
Psychosis occurs when a person loses contact with reality. The word “psychosis” scares some
people, but it actually describes an experience that many people have. Three out of every 100
people experience psychosis at some time in their lives, and most of them recover.
What Causes Psychosis?
Psychosis could have a number of different causes, and many researchers are working to
understand why psychosis occurs. Some popular ideas are:
Biological: Some people are more likely to develop psychosis because of their biology or
their heredity. Many cases of psychosis have been linked to problems with
neurotransmitters, the chemical messengers that transmit impulses throughout a person’s
brain and central nervous system. In addition, the relatives of people who experience
psychosis are more likely to experience psychosis themselves.
Other factors: A person’s first episode of psychosis can be triggered by stressful events or
by drug use (especially use of marijuana, speed, or LSD).
What Is the Role of the Family in Recovery From Psychosis?
Family members can be extremely important in the recovery process. The person may have
difficulty in the early period with many things which used to be easy for them. When a person is
recovering from their psychotic episode you can provide love, stability, understanding and reas-
surance, as well as help with practical issues. There are many ways that family members can help
a person in recovery from psychosis. Family members can:
Help the person with psychosis get to treatment appointments and work with their
treatment team.
Stay in regular contact with the treatment team.
Advocate for the person with psychosis to get the support he/she needs.
Learn about psychosis so you know what is happening.
Assist with remembering and initiating appointments and activities.
Observe and report symptoms the person with psychosis may not be aware of.
Include the person with psychosis in family and social activities.
Maintain a safe, positive, supportive atmosphere at home.
Help with finances.
Take care of yourself and get your questions answered.
Understand the goals that your loved one has for recovery.
Be patient.
Attend family support groups in your area to learn how other families cope and support
the recovery of loved ones.
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The RAISE Connection Program:
Helping people live their best lives
Recovery From Psychosis
Three out of every 100 people experience psychosis at some time in their lives, and most of them
recover. Recovery from psychosis results in some important life changes, and there are several
things people can do to help themselves .
What Is It Like to Recover From Psychosis?
Different people have different stories to tell about their recovery from psychosis. For example,
some recover very quickly, while others feel better after several months. With treatment, support,
and hard work, people in recovery from psychosis can look forward to their lives improving in
some important ways:
Symptom reduction: People recovering from psychosis have fewer symptoms of
psychosis, and the symptoms they do experience are less intense. That means these
individuals are less likely to hallucinate (i.e., see, hear, taste, smell, or feel things that are
not there), and they are less likely to have delusions (i.e., beliefs in things that are not
true). These individuals also begin to think, feel, and act more like they did before they
had psychosis.
Improved relationships: People experiencing psychosis usually cannot relate to friends,
family, and other significant people in their lives as they did before psychosis. Once the
psychosis begins to subside, though, they can begin to rebuild those relationships.
More connections with outside world: Perhaps because they have fewer symptoms to
deal with and more support from other peoplepeople recovering from psychosis often
can focus more time and energy on important personal goals like completing school,
getting a good job, enjoying friends and family, and other things that make life fun and
meaningful.
What Helps People Recover From Psychosis?
The most important thing that helps people recover from psychosis is getting active. It may
sound strange, but passively sitting around waiting for medicine and the professionals to cure
you is usually not the way recovery happens! Most people who recover get active by:
Participating in treatment: Active treatment participants partner with their treatment
providers to learn all they can about their treatment options, such as medications and
therapy. They keep their appointments with these providers, and give the providers
honest feedback about how treatment is working or not working for them.
Focus on personal goals: Personal goals in work, school, or other areas of life can be
strong motivators for people recovering from psychosis. If they are not immediately
65
ready to resume all their previous activities, people recovering from psychosis can set
smaller, more realistic goals that will help them make progress.
Finding support: Friends, family, and other important people can provide important
encouragement as people recover from psychosis. In addition, support groups for people
who are recovering from psychosis can be important. In a support group you can find
hope, friends, pride and proven strategies for getting well.
Taking care of yourself: Recovering from psychosis is hard work, so people recovering
from psychosis must make sure they take good care of themselves. This means they need
good diets, plenty of exercise and sleep, and regular medical check-ups.
Taking an honest look at drug and alcohol use: For some people, drug and alcohol use
can trigger psychosis or make it worse. It can really help to take an honest look at one’s
drug or alcohol use and ask , “has it contributed to my psychosis?”
Keeping your time structured: Many people find that being bored is stressful. Just
hanging around doing nothing is typically not helpful. Get busy and structure your day
with activities such as school, work, volunteering, friends and exercise. Try to find the
right balance between time alone and time with people.
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Appendix 10: Sample Forms for Supervision Notes
Supervision Note
Date: _________________________________________________________________________
Type of meeting: Administrative supervision
Clinical supervision
Clinical consultation
Component supervision
Model supervision
Team members present: Team Leader
Psychiatrist
Recovery Coach
IPS Specialist
Clinic Administrator
Program Director
Other: ________________________________________________
Meeting Leader: ________________________________________________________________
Attendance (please check):
Name Name
Name Name
Name Name
Name Name
Name Name
Name Name
Issues Discussed:
Plans/actions for next meeting:
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Appendix 11: Resources for Supervision
Association of Psychology Postdoctoral and Internship Centers
http://www.appic.org/Training-Resources/Resources#Supervision
Mental Health Evidence Based Practice Project
http://www.socialwork.buffalo.edu/ebp/supervision/index.htm
SAMHSA
http://toolkit.ahpnet.com/Dealing-with-Stress-in-the-Workplace/Impact-of-Stress-on-
Retention/Want-to-Reduce-Stress-and-Burnout-in-Behavioral-He/Mentoring-and-Clinical-
Supervision-Programs.aspx
Slide sets and other resources for Clinical Supervision: A Competency-based Approach by
Carol Falender, Ph.D.
http://www.cfalender.com/
Azar S A. (2000). Preventing burnout in professionals and paraprofessionals who work with
child abuse and neglect cases: A cognitive behavioral approach to supervision. J Clin Psychol,
56(5), 643–663.
Edwards D, Burnard P, Hannigan B, et al. (2005). Clinical supervision and burnout: The
influences of clinical supervision for community mental health nurses. J ClinNurs, 15(8), 1007
1015.
Torrey WC, Drake, RE, Dixon L, et al. (2001). Implementing evidence-based practices for
persons with severe mental illness. Psychiatr Serv, 52(1), 45–50.
Triantafillou N. (1997). A solution-focused approach to mental health supervision. J Syst Ther,
16(4), 305–328.
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Mental Health Self Help (and other) Resources
FINDING RESOURCES LOCALLY
The three agencies / projects below are resource centers in our area to help people connect to a wide variety of
health, human services, self-help and other resources. Useful for clinicians, clients, families etc.
Maryland Community Services Locator:www.mdcsl.org
Searchable directory of health, human services, self help and other community resources across the state.
Available to anyone who can access the website. See handout flier
Dial 2-1-1:www.211metrodc.org
Anyone can literally dial 2-1-1 any day on any phone (like dialing 311 for city services or 911 for emergency) to get
connected to operators who can help them find social services in DC, Northern VA and parts of MD.
The website also has a searchable directory like MDCSL
See the bottom of the site’s front page for additional regional resource centers to call for help as well.
Baltimore Crisis Response, Inc (BCRI): www.bcresponse.org
Hotline: 410-433-5175 or 410-752-2272
Office: 410-433-5255
NATIONAL SELF-HELP RESOURCE WEBSITES
American Self Help Group Clearing House:http://www.mentalhelp.net/selfhelp/
Self-Help Group Sourcebook Online look up groups on many topics, US and international. Very good links to
related resources
National Self Help Clearing House:http://www.selfhelpweb.org/index.html
(???) or 212-817-1822
“to facilitate access to self-help groups and increase the awareness of the importance of mutual support
National Mental Health Consumers Self Help Clearing House:http://www.mhselfhelp.org/
Info source and technical assistance for mental health consumer self-help organizations and individuals
Center for Community Support and Research, WSU:http://www.ccsr.wichita.edu
Broad center re strengthening community organizations with a long history and deep relationship with self help
groups. Many good resources re self help research and capacity-building.
MH SELF HELP LOCALLY
Also see National Resources, below
On Our Own of Maryland, Inc:www.onourownmd.org
Wide array of self help and advocacy programs and support groups across the state for people with mental illnesses
List of affiliates across Maryland: http://www.onourownmd.org/affiliates.html
State office: 410-646-0262 or 800-704-0262
Depression and Bipolar Support Alliance www.dbsalliance.org
National contacts to find local groups: 800-826-3632 or chapters@dbsalliance.org
To find local chapters and support groups:
http://www.dbsalliance.org/site/PageServer?pagename=support_findsupport
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Recovery International, Inc.:http://www.lowselfhelpsystems.org/index.asp
“self-help mental health organization founded in 1937, sponsors weekly group peer-led meetings in nearly 600
communities around the world, as well as telephone and Internet-based meetings..” (312) 337-5661 or
inquiries@recovery-inc.org
To find a Maryland meeting: http://www.lowselfhelpsystems.org/meetings/meetings-per-city.asp
Alcoholics Anonymous, Baltimore area:http://baltimoreaa.org
or 410 663-1922
Provides contacts for local meetings and 24hr phone support
Narcotics Anonymous, MD:http://www.freestatena.org
or 1-800-317-3222
Provides contacts for local meetings and 24hr phone support
MD Coalition of Families for Children’s Mental Health:http://www.mdcoalition.org/
“dedicated to improving services for children with mental health needs and their families, and building a network of
information and support for families across Maryland”
Statewide office: 410.730.8267 or 1.888.607.3637
Baltimore office: 410.235.6340 or 1.888.607.3637
Parents Place of Maryland:http://www.ppmd.org/
410-768-9100 or info@ppmd.org peer support for parents of children with all disabilities”
Jewish Coalition Against Sexual Abuse and Assault: http://www.theawarenesscenter.org/networkinggroups.html
[email protected] or 443-857-5560 support groups and information
Autism Society of America Baltimore Chesapeake Chapter:
http://www.bcc-asa.org/BCCASAMeeting.htm or questions@bcc-asa.org
or 410-655-7933
support groups and information for parents of children with autism spectrum, for siblings, and for adults with autism
spectrum
NAMI Maryland:http://md.nami.org/
410-863-0470 or helpline:800-467-0075 or namimd@nami.org
Information, support, skill classes, education programs and other resources for family members of people with
mental illnesses and clients themselves. Local chapters in every county:
http://md.nami.org/aboutus/aboutus_affiliates.htm
MH SELF HELP NATIONAL RESOURCES
National Empowerment Center:www.power2u.org
800-769-3728 or info4@power2u.org
wide array of high quality consumer-created resources, trainings, self-help packages, strategies and links
Emotions Anonymous:http://www.emotionsanonymous.org/
“a twelve-step organization… composed of people who come together in weekly meetings for the purpose of
working toward recovery from emotional difficulties…the only requirement for membership is a desire to become
well emotionally.” Many meetings online, but also in person. To find local meetings: (651) 647-9712 or
infodf3498fjsd@emotionsanonymous.org
GROW, Inc:www.growinamerica.org
“an international mental health movement with a network of member-run support groups in the USA, Australia,
New Zealand and Ireland. GROW in America is fully developed in Illinois and New Jersey. It also has a small core
of groups in Rhode Island. GROW is organized, friendly help. It is based on mutual-help groups, friendship,
leadership and mutual education. People come to GROW with diverse problems in living, such as mental health
issues, emotional troubles, or difficulty coping with grief, loneliness, anxiety or stress…”
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OTHER
Example of in print self help resources (domestic violence):
http://resources.baltimorecountymd.gov/Documents/Women/selfhelp2005.pdf
Suicide Hotlines, (various organizations centralized service):
http://www.suicide.org/suicide-hotlines.htm
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Appendix 12: Resources for Fidelity
Recommended Performance Measures/Fidelity Requirements for
First Episode Psychosis Programs
Based on Experience with the RAISE Connection Program’s Standards and Practices
(January 29, 2013)
Performance Expectations for the Team’s Structure and Functioning
Program Component and Associated Expectations
Operationalization of Expectations
Staffing. Teams hire and maintain the required staff.
1.0 FTE Team Leader who is a licensed clinician
1.0 FTE IPS Specialist
0.5 FTE Skills Trainer who is a licensed clinician
0.2 FTE Psychiatrist
Vacancies are filled within 30 days
Caseload size. Teams maintain a caseload that is small enough to allow for
intensive and highly individualized services while, at the same time, serving as
many clients as possible within these service demands.
Caseload does not exceed 30
Staff meet as a team. These meetings are for strategic clinical thinking and
reviewing the status and “next steps toward goals” for each person on the team’s
caseload.
Full team meets at least weekly.
Intake occurs promptly.
Intake occurs within 1 week of referral.
At least one member of the team is available 24/7.
Team has on-call system for after-hours availability and service logs show
that any given month includes services on nights and weekends.
Outreach. Teams see clients in the field as needed.
At least 10% of participants have at least one visit in the community with
the Team Leader, psychiatrist, and/or recovery coach.
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Program Component and Associated Expectations
Operationalization of Expectations
Safety assessment. All clients assessed for suicide risk and safety plans are
formulated and implemented for those determined to be at risk.
The HASS Demo or equivalent screening tool is completed with every
participant at intake and whenever concerns about possible suicide are
raised.
For those who meet or exceed the specified threshold indicating a risk of
suicide, a safety plan developed the same day of the screening is included
in the chart. Is this given to the individual and the family so they will be
able to act according to the plan?
Discharge.
The team provides a critical time intervention rather than a source of services
for people well along in their recovery. Clients transition from the team to
routine services as soon as clinically appropriate. The team follows up with
discharged clients and with post-
discharge providers as appropriate to help
assure a smooth transition to routine community services.
Median and average length of stay with Connection Team of all
participants to be calculated at the end of each quarter.
Mean length of stay for discharged clients will not exceed 30 months.
Individual length of stay for any participant will not exceed 36 months.
At least 90% of participants plan for discharge with Team (as opposed to
leaving precipitously).
Discharge planning begins at least XXX months
prior to the discharge date.
At least 90% percent of discha
rged participants attend their first
appointment with a mental health service provider within 30 days of
discharge.
Performance Expectations for the Psychopharmacology Intervention
Domain and Expectation
Operationalization of Expectations
Psychotropic Medications.
Pharmacotherapy is a core component of treatment. Because many clients with
FEP are reluctant to try medication, teams work to develop trusting
relationships and provide education about medication options and best practices
for medication treatment for FEP so that clients are willing to try antipsychotic
medications.
Antipsychotic medication is prescribed for at least 60% of patients on the
team at any given time.
At least 75% of patients have had at least one trial of an antipsychotic
medication prescribed for at least 4 weeks within the recommended
dosage range.
Assessment of medication effects. Psychiatrist and client regularly review
medication effectiveness and side effects.
At least quarterly, psychiatrist and client review medications.
Psychiatrist records symptoms and side effects using standardized
assessment scales in a manner that facilitates monitoring changes over
time.
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Domain and Expectation
Operationalization of Expectations
Weight gain of over 1 BMI prompts consideration of a change (in
medication, dosage, or behavioral intervention).
Assessment of weight.
Weight is assessed monthly.
Assessment of fasting glucose/HbA1c and lipids.
Assessment of fasting glucose/HbA1c and lipids conducted at intake, 2
months after, and then annually. Schedule repeated if new antipsychotic
started.
Performance Expectations for Services by the Recovery Coach or Equivalent Clinician
Domain and Expectation
Operationalization of Expectations
Recovery Coach provides flexible, motivational interventions. Recovery
Coach works with clients and families, supporting resiliency and skill building
in illness management and recovery treatment and treatment for substance use.
Recovery Coach’s service logs indicate the provision of both group and
individual sessions in illness management and recovery.
At least 75% of patients participate in at least one session provided by the
Recovery Coach.
At least 25% of clients have one or more family members participate
(whether or not client is present) in at least one session provided by the
Recovery Coach.
Recovery Coach’s service logs indicate the provision of substance abuse
treatment to at least 25% of clients.
Performance Expectations for the Family Intervention
Domain and Expectation
Operationalization of Expectations
Working with families.
Team discusses with each client ways family might be involved in the client’s
treatment and determines each client’s preferences and reassesses these
preferences periodically. Team documents family’s participation in treatment
over time.
Team has conversation with all participants regarding their preferences for
family involvement as part of intake and at least quarterly thereafter.
Service logs note when family member is present.
Service logs indicate that, in any given quarter, at least 50% of clients
have one or more family members meeting with a member of the team at
least once.
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Performance Expectations for the Individual Placement and Support (IPS) Specialist
Domain and Expectation
Operationalization of Expectations
IPS specialist focuses exclusively on supported employment and supported
education.
IPS specialists provide only employment and education services. Service
logs indicate that less than 10% of the IPS specialist’s time is devoted to
case management and crisis services, administrative duties, or other duties
not directly related to employment or education.
Team Leader provides intensive, outcome-based supervision
Team Leader conducts biweekly IPS supervision to review client
situations and identify new strategies and ideas to help clients in their
work lives. IPS records document at least 2 such meetings per month.
Team L
eader reviews employer contact logs with IPS specialist at least
twice per month and helps IPS specialist think of plans to follow up with
employers and teachers/instructors. IPS records document at least 2 such
meetings per month.
Team Leader reviews current client outcomes with IPS specialist and sets
goals to improve program performance at least quarterly, with a monthly
review.
Team maintains a list of performance goals and associated
performance over time.
Zero exclusion criteria.
All clients interested have access to IPS regardless of readiness factors,
substance abuse, symptoms, history of violent behavior, cognition impairments,
treatment non-adherence, and personal presentation.
IPS specialist has met with at least 90% of clients at least once. Current
case load of IPS specialist includes individuals actively using substances
(unless the very unlikely situation exists wherein no clients on the team
are abusing drugs/alcohol).
Competitive jobs and mainstream education promptly pursued.
IPS specialists help clients pursue permanent competitive jobs and academic
opportunities in mainstream, integrated educational settings.
Acceptable jobs
include seasonal jobs and temporary jobs that are part of the community's
regular labor market.
Team monitors rates of being in school or employed and at least 50% of
clients are either in school pursuing a degree or competitively employed.
Individualized follow-along supports. IPS specialist helps client problem
solve work/school iss
ues, based on a job/education support plan. The IPS
specialist assists the client to seek out and benefit from natural supports (e.g.,
tutoring services, coworkers, family, etc.).
Support is based on client
preferences, work history, needs, and demands of the work/school environment.
At client's request, IPS specialist provides employer supports or intervenes at an
academic institution (e.g., educational information, job accommodations). The
At least 80% of the time, there is at least one visit with the IPS specialist
between the job/academic start and end dates. If there exists at least one
face-to-face meeting by the IPS worker during the client's job tenure/time
in school, then the standard of follow along supports has been met. If there
is no such service, then the standard hasn't been met.
If the job/school lasted only one day, omit from the computing of this
measure.
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Domain and Expectation
Operationalization of Expectations
IPS specialist promotes career development, assisting clients in the pursuit of
education and training, more desirable jobs and more preferred job duties. Most
contact is face-to-face.
At least 50% of IPS specialist's time is in community settings (outside the
mental health center), devoted to engagement, employer and educational
institution contacts, providing follow-along support, etc.
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